
My Wife Has Huntington’s Disease — The Fight for Help, Hope and a Life Worth Living
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Huntington’s disease affects thousands of families across the UK — but many still haven’t heard of it. And when it comes to men’s health, taboo and time can be two of the biggest barriers to care.
Dr. Hilary sits down with two very different guests sharing one goal: better health through awareness, support, and accessible solutions. First, Steve Lewis, filmmaker and devoted husband, opens up about caring for his wife Sarah and raising awareness about Huntington’s through their powerful story. Then, digital health pioneer Sokratis Papafloratos discusses his personal health scare and how it inspired the creation NUMAN, an online health platform revolutionizing how men (and now women) access care.
Together, they explore:
• What it’s really like living with Huntington’s disease
• How genetic testing impacts family planning
• The emotional toll on carers — and what support’s out there
• Pre-implantation genetic diagnosis: giving children a future without Huntington’s
• Why many GPs have never seen a case — and why that must change
• Making health care more accessible and less embarrassing for men
• Why AI and digital platforms may be the future of treatment
• The testosterone crisis and how it affects energy, mood, and libido
• Humour in health: why TV ads broke taboos to get men talking
💬 Ask Dr Hilary
Whether it's advice on sleep, diet, mental well-being, or everyday medical concerns, now's your chance to get answers. Each week, Dr. Hilary will answer your health and wellness questions. If it's on your mind, he wants to help. Send your questions to Ask@drhilaryjones.com
For more information about the show, visit drhilaryjones.com
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