HC&U Podcast Por Ben and Lindsey Massengale arte de portada

HC&U

HC&U

De: Ben and Lindsey Massengale
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This podcast is meant to be a resource for patients and caregivers dealing with the metabolic disorder, homocystinuria- also known as HCU. Arte Comida y Vino Hygiene & Healthy Living
Episodios
  • Episode 40 with Rene van Oorschot
    Jun 26 2025

    In the fortieth episode of HC&U, we interview Rene van Oorschot.

    Rene is the father of Nico, a classical HCU patient living in Scotland. Rene and I discuss Nico's journey to diagnosis and the challenges and successes of living with HCU.

    During Lindsey's Low Pro Bitesss, we talk about jackfruit sloppy Joe sandwiches.

    Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

    Check out HCU Network America!

    HC&U on Facebook

    Find Our Low Protein Ideas on Instagram!

    HC&U on Twitter

    HCU Network America on Twitter

    What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

    Share your NBS story with HCUNA!

    Nico's Story

    #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

    Más Menos
    46 m
  • Newborn Screening Bonus Episode
    Jun 19 2025

    We hope you enjoy Ben's interview with Allison Herrity, senior policy analyst at NORD, about Newborn Screening in America and what the path forward for NBS looks like!

    In Lindsey's Low Pro Snackssss, we talk about Simply Nature fruit strips.

    P.S. Thanks to everyone who voted in our poll for HC&U's new podcast art!

    Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

    Check out HCU Network America!

    HC&U on Facebook

    Find Our Low Protein Ideas on Instagram!

    HC&U on Twitter

    HCU Network America on Twitter

    What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

    Share your NBS story with HCUNA!

    NORD's Paper

    #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

    Más Menos
    40 m
  • Episode 39 with Michael Stevenson
    May 29 2025

    In the thirty ninth episode of HC&U, we interview Michael Stevenson.

    Michael is a classical HCU patient living in Australia. Michael and I discuss his journey to diagnosis and his brother, Phillip's, instrumental role in the overall understanding of HCU.

    During Lindsey's Low Pro Bitesss, we talk about jackfruit salad sandwiches.

    Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

    Check out HCU Network America!

    HC&U on Facebook

    Find Our Low Protein Ideas on Instagram!

    HC&U on Twitter

    HCU Network America on Twitter

    What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

    Share your NBS story with HCUNA!

    Michael's Story

    #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

    Más Menos
    42 m
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