
063: How I Beat the Feeding Tube for Good!
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What happens when the simple act of eating becomes impossible? For eight years, Zach lived on medical formula, rice cakes, and pears due to a severe case of eosinophilic esophagitis (EOE), a chronic illness that drastically restricted his diet and transformed his relationship with food and his own body.
Zach's powerful story begins at age 15, when doctors determined he needed to follow an extremely limited diet to manage his condition. The physical limitations were challenging, but the mental and emotional toll of being unable to participate in one of life's most fundamental and social activities proved equally difficult. "It's such a mental burden to be around people eating," he reflects, describing years of watching friends enjoy meals while he consumed the same bland items day after day.
Throughout this journey, Zach developed remarkable resilience and perspective. Swimming became his outlet during high school, while creative expression through rap music about his unique dietary situation provided both humor and release. When medical interventions became necessary, he embraced a feeding tube to improve his quality of life, even as he occasionally rebelled by "cheating" on his diet, accepting the painful consequences as sometimes "worth it" for moments of normalcy. His outlook transformed from questioning why this happened to him to embracing a philosophy that "being negative doesn't change your circumstance."
The turning point arrived unexpectedly in 2020 when doctors offered an experimental medication that gradually allowed him to tolerate food again. Two years later, Zach had his feeding tube removed, leaving behind a scar he now cherishes as "like my second belly button...a little reminder of where I've come from." His story illuminates not just the physical challenges of chronic illness, but the profound mental journey of acceptance, adaptation, and ultimately hope even in the most restricting circumstances.
Have you faced health challenges that transformed your relationship with something most people take for granted? Share your story or thoughts about Zach's powerful journey of resilience in the comments, or connect with organizations like Cured that support research for eosinophilic conditions.
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