On the tip of my tongue - talking about Aphasia Podcast Por Jonathan Hirons and Rob Edwards arte de portada

On the tip of my tongue - talking about Aphasia

On the tip of my tongue - talking about Aphasia

De: Jonathan Hirons and Rob Edwards
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Jonathan Hirons's journey following his stroke and diagnosis of aphasia is both inspiring and informative. Here’s a summary of his experience and insights about aphasia:

Jonathan's Experience with Aphasia


1. Initial Incident:


In January 2019, while in a business meeting, Jonathan began to feel strange and soon realized he could not communicate effectively. His colleagues quickly called for medical help.


2. Medical Emergency:

He was rushed to University College Hospital, where scans revealed he had suffered a stroke due to a bleed on the brain. He spent five nights in the hospital and was diagnosed with aphasia.



3. Impact on Daily Life:


- Jonathan struggled with basic tasks such as speaking, reading, and writing.
- He had memory issues, recalling only his postcode but not his full address or other personal information.
- He faced challenges in understanding spoken language but could still sign his name.


4. Support from Family:

His wife, Ann, played a crucial role in his recovery:
- She encouraged him to read aloud daily and used flashcards to aid in word recognition and writing.
- This early intervention was vital for his rehabilitation.



5. Progress Through Therapy:

With the help of speech therapy, Jonathan made significant improvements:
- He regained much of his ability to read and write, although he still experiences difficulties, especially when tired.



6. Advocacy and Awareness:


- Jonathan has turned his experiences into a creative outlet by producing films, including "On the Tip of My Tongue" and "What is Aphasia?" These films aim to educate others about aphasia and its challenges.
- He actively shares his story to raise awareness about aphasia as a hidden disability and the ongoing need for support beyond initial rehabilitation.



Understanding Aphasia


Aphasia is a language disorder that affects communication abilities, including:
- Speaking: Difficulty in forming words or sentences.
- Understanding: Challenges in comprehending spoken or written language.
- Reading and Writing: Problems with reading text or writing coherently.



Key Takeaways


- Aphasia is often a result of brain damage, commonly from strokes, and can significantly impact daily life.
- Early intervention and support are crucial for recovery.
- Awareness and education about aphasia can help reduce stigma and improve support for those affected.

Jonathan's story highlights the resilience of individuals facing such challenges and the importance of community support in their recovery journey.


Copyright © 2025 Jonathan Hirons/Buffalo Lounge Studios All Rights Reserved.


This film/video/podcast is protected by copyright law. Unauthorized reproduction, distribution, or transmission of this material is prohibited.


For permissions or inquiries, please contact hello@buffalolounge.co.uk

© 2025 Jonathan Hirons/Buffalo Lounge Studios All Rights Reserved. For permissions or inquiries, please contact hello@buffalolounge.co.uk
Ciencias Sociales Economía Exito Profesional Hygiene & Healthy Living Psicología Psicología y Salud Mental
Episodios
  • On the tip of my tongue S3 E1 - Iain Stansfield and Dr Suzanne Beeke
    May 19 2025

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    Navigating Conversations with Aphasia: Insights from Iain Stansfield

    In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons explore the intricacies of living with aphasia through a conversation with Iain Stansfield and Dr. Suzanne Beeke. Iain shares his personal journey following a stroke, emphasising the challenges of communicating with aphasia and the impact on relationships. The discussion delves into experiences from the 'Better Conversations with Aphasia' therapy group, a program developed by Dr. Beeke at UCL. Key points include the significance of video reflection in improving communication strategies and the evolving dynamic between individuals with aphasia and their partners. Listeners are encouraged to support the podcast and can find more resources at stroke.org.uk, sayaphasia.org, or the NHS aphasia page.

    00:00 Understanding Aphasia: A Shift in Conversations
    00:34 Welcome to 'On the Tip of My Tongue'
    02:33 Introducing Iain Stansfield
    03:06 The Therapy Group Experience
    04:42 Reflections on Communication Challenges
    06:40 Impact of Video Reflections
    07:37 Changes and Insights Post-Therapy
    10:49 Future Directions and Final Thoughts
    12:33 Conclusion and Resources

    Support the show

    Support the show: Donate Now

    This podcast is funded by https://www.bas.org.uk


    To watch Jonathan’s film: https://tipofmytonguefilm.com

    http://x.com/buffaloloungeuk
    https://www.linkedin.com/in/jonathanhirons/

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org

    Más Menos
    13 m
  • On the tip of my tongue S2 E12 - Dan's Journey: Triumph Over Aphasia
    May 9 2025

    Send us a text

    Dan's Journey: Triumph Over Aphasia

    In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the life of Dan Sutton, who suffered severe head injuries from a cycling accident in 2016. These injuries resulted in Aphasia and mobility challenges. Despite his struggles, Dan founded the Minds Over Matter Social Group to create a supportive community for individuals with brain injuries. The episode explores Dan's daily routines, his love for social activities, and how he navigates the complexities of living with Aphasia. Listeners learn about the significance of shared experiences and community support in overcoming adversity. The hosts also highlight the importance of raising awareness about Aphasia, a condition that remains relatively unknown despite affecting 350,000 people in the UK.

    00:00 Understanding Brain Injury and Aphasia
    00:23 Introduction to the Podcast
    00:41 What is Aphasia?
    01:19 Dan Sutton's Inspiring Journey
    02:07 Daily Life and Challenges
    02:44 Social Activities and Hobbies
    04:10 Struggles with Reading and Audio Books
    05:54 The Power of Community and Support
    09:10 Singing and Aphasia
    10:14 Conclusion and Resources

    Visit the to Minds over Matter instagram account

    https://www.instagram.com/mindsovermatter.osm/

    Support the show

    Support the show: Donate Now

    This podcast is funded by https://www.bas.org.uk


    To watch Jonathan’s film: https://tipofmytonguefilm.com

    http://x.com/buffaloloungeuk
    https://www.linkedin.com/in/jonathanhirons/

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org

    Más Menos
    11 m
  • On the tip of my tongue S2 E11 - Breaking Barriers: Disability Awareness and Inclusion with Sarah Petherbridge
    Apr 8 2025

    Send us a text

    Breaking Barriers: Disability Awareness and Inclusion with Sarah Petherbridge


    In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons discuss the challenges and misconceptions surrounding disabilities, particularly aphasia. They are joined by Sarah Petherbridge, a disability trainer and speaker who shares her experiences of living with profound deafness and working in the corporate sector. Sarah emphasizes the importance of creating inclusive workplaces and the need for a shift from diversity initiatives to genuine inclusion. She discusses the impact of government policies on disability rights, the importance of technology, and the necessity of changing societal attitudes. The conversation also highlights strategies for small businesses to promote inclusivity without incurring substantial costs. The episode underscores the broader definition of disability and the significant progress needed to close the disability employment and pay gaps.

    00:00 Introduction to the Podcast
    00:36 Understanding Aphasia
    01:13 Meet Sarah Petherbridge: Disability Trainer and Speaker
    02:19 Sarah's Journey and Business
    03:02 Challenges and Changes in Disability Inclusion
    06:17 Employment Gaps and Workplace Adjustments
    19:39 The Role of Technology in Disability Inclusion
    20:30 Social Perceptions and Personal Experiences
    31:29 Future Outlook and Final Thoughts
    32:51 Conclusion and Resources

    https://www.sarahpetherbridge.co.uk

    Support the show

    Support the show: Donate Now

    This podcast is funded by https://www.bas.org.uk


    To watch Jonathan’s film: https://tipofmytonguefilm.com

    http://x.com/buffaloloungeuk
    https://www.linkedin.com/in/jonathanhirons/

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org

    Más Menos
    34 m
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