Psychosis can be a difficult thing to explain. It is a term used when people experience a ‘loss of touch’ with reality. Around 3% of people will have a psychotic episode during their lifetime.

Leading the discussion for us today is Maleeha, a member of the peer support group at Headroom Cardiff, who support young people in Wales that have experienced psychosis. Joining Maleeha are Bekah and Hezron, both of whom have experienced an episode of psychosis and became friends through the peer support group.

Maleeha, Bekah and Hezron, kindly share their experiences of psychosis which they went through as young adults at university. They also share what they found helpful during this time and the difference the support services and peer support group made to their recovery.

If you or someone you know may be experiencing psychosis, you should contact their GP practice. If there's an imminent danger of harm, call 999 and ask for an ambulance.

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Psychosis is when you perceive or interpret reality in a very different way from people around you, it may also be called a 'psychotic experience' or 'psychotic episode'.

Psychosis often begins in young adulthood when a person is in their late teens to mid-20s. However, people can experience a psychotic episode at younger and older ages and as a part of many disorders and illnesses. For instance, older adults with neurological disorders may be at higher risk for psychosis.

This year we’ve been fortunate to work with NHS Wales to revamp Psychosis Wales, the website for information and resources for young people who are experiencing or recovering from psychosis in Wales.

In this episode, we met with Maleeha Akbar and Eleanor Williams.

Maleeha is based in Cardiff and experienced psychosis when she was at university. She now works for Cardiff and Vale Drug and Alcohol Service and facilitates the Headroom peer support group for young people who have experienced psychosis in Cardiff. Maleeha has kindly shared her experience of recovering from psychosis and how she got involved with the peer support group.

Eleanor is the Clinical Team Leader for Headroom, the service supporting people with psychosis in the Cardiff and Vale University Health Board.

Psychosis can be frightening and make it difficult to maintain quality of life, but treatment and support are available. With the right treatment, such as therapy and medication, many people recover gradually.

If you or someone you know may be experiencing psychosis, you should contact their GP practice. If there's an imminent danger of harm, call 999 and ask for an ambulance.

• Psychosis Wales website - find details about Headroom Cardiff
• NCMH Research Community - sign up today!
• Brain and Genomics Hub research study

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Did you know that you have the option to guide mental health professionals in your treatment and care in case you become unwell?

Advance Choice Documents (ACDs) give people living with mental illnesses an opportunity to state their wishes and instructions about their treatment and care during future episodes of illness.

They give you a chance to make your voice heard in future mental healthcare decisions by using your knowledge, gained through past experience of illness and healthcare, to guide a clinical team through future episodes of illness. Recent research has suggested that the use of ACDs could reduce the rate of sectioning by up to 25%. 

We chatted to Professor Tania Gergel about her work to raise awareness of this vital tool for people with severe mental illness.

Tania is the Director of Research at Bipolar UK and a Honorary Senior Research Fellow in the Division of Psychiatry at University College London and here at Cardiff University. She’s also the lead for bipolar research at NCMH.

You can read more about ACDs at advancechoice.org

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