Disability Memoir

Le 8 décembre 1995, à la suite d’un accident vasculaire cérébral, Jean-Dominique Bauby est plongé dans un coma profond. Quand il en sort, toutes ses fonctions motrices sont détériorées. Atteint de ce qu'on appelle le " locked-in syndrome ", il est littéralement enfermé à l'intérieur de lui-même ; il ne peut plus bouger, manger, parler ou même simplement respirer sans assistance. Dans ce corps inerte, seul un œil bouge.

My name is Joseph A. Peragine, and I am a paranoid schizophrenic. On October 22, 2000, I tried to kill myself in a severely hallucinogenic state due to undiagnosed paranoid schizophrenia. I was suffering from this illness for many years leading up to that day. Every October since I started my recovery in 2000, I reflect on my life and am extremely thankful that I was fortunate enough to have been given a second chance. Every October, I especially make it a priority to tell my family and loved ones how much I love them.

In the fall of 1988, Sue Miller found herself caring for her father as he slipped into the grasp of Alzheimer's disease. She was, she claims, perhaps the least constitutionally suited of all her siblings to be in the role in which she suddenly found herself, and in The Story of My Father she grapples with the haunting memories of those final months and the larger narrative of her father's life.

In 1997, Daniel Trush, a bright, active, outgoing twelve-year-old, collapsed on the basketball court and fell into a deep coma. Rushed to the hospital, he was found to have five previously undetected aneurysms in his brain. One had burst, causing a massive cerebral hemorrhage. While Daniel remained comatose, the uncontrolled pressure inside his skull caused him to suffer multiple strokes.

Three months into her pregnancy with her first child, Hilary Yancey received a phone call that changed everything. As she learned the diagnosis - cleft lip and palate, a missing right eye, possible breathing complications - Hilary began to pray in earnest. Even in the midst of these findings, she prayed that God would heal her son. God could do a miracle unlike anything she had seen. Only when Hilary held her baby, Jack, in her arms for the first time did she realize God had given her something drastically different than what she had demanded.

In Everything Is Going to be K.O. Kaiya Stone writes about her own experiences of living with specific learning difficulties: from struggling at school to being diagnosed with dyslexia and dyspraxia while at university, to performing her own one-woman stand up show inspired by her journey. Always funny and unfailingly honest, Kaiya outlines the frustrations of having SPLDS but also the ways in which they have fuelled her creativity.

David Aguilar was born missing part of one arm, a small detail that seemed to define his life and limit people’s ideas of who he was and who he could be. But in this funny and heartfelt memoir, David proves that he can throw out the rulebook and people’s expectations and maybe even make a difference in the world—and all with a sense of humor.

Rosemary Mahoney tells the story of Braille Without Borders, the first school for the blind in Tibet, and of Sabriye Tenberken, the remarkable blind woman who founded the school. Fascinated and impressed by what she learned from the blind children of Tibet, Mahoney was moved to investigate further the cultural history of blindness. As part of her research, she spent three months teaching at Tenberken's international training center for blind adults in Kerala, India, an experience that reveals both the shocking oppression endured by the world's blind, as well as their great resilience.

Women's lives are shaped by sexism and expectations. Disabled people's lives are shaped by ableism and a complete lack of expectations. But what happens when you're subjected to both sets of rules? This powerful, honest, hilarious, and furious memoir from journalist and advocate Lucy Webster looks at life at the intersection; the struggles, the joys, and the unseen realities of being a disabled woman.

The spoiler is that Platinum, the shiny precious metal we may associate with glamour and wealth, was an ingredient in one of the chemo compounds. In this context, it functioned as a poison, carrying out the bizarre miracle of chemotherapy where death and life meet. Tracing through the paradoxical tensions of treatment, healing from treatment, succumbing to medicine and claiming autonomy, Hannah Kate guides us through essential components of the journey. There are material resources that will support you—yet much of what is needed requires connecting with the fundamental elements of life.

Hilda’s family didn’t know she had muscular dystrophy. They just knew their preschooler was losing her ability to walk. But they were determined to find a cure. Being disabled in Cameroon meant not only obstacles to transport, but visits to diviners and evangelists, threats of sexual assault, discrimination, and a crisis of faith. Despite the hardship Hilda has faced, her family’s unwavering support and God’s unwavering grace have helped her persevere to become a national broadcaster.

Ambition to succeed was inborn before the days of sight-saving classes and the many provisions now available. This book is her achievement. Her ambition was to teach teachers.

One fine April day, Mary Ann Kenny’s husband died suddenly while jogging near their family home. In the months that followed, Mary Ann – who had no history of mental illness – began suffering from depression, and then from a terrifying succession of physical and psychological symptoms, including the delusion that her young children had been harmed by her medications.

How a mechanic rose above poverty and chronic anxiety to build a national enterprise and found peace with himself and his past in the process. Prepare to embark on a journey of emotions. This must-listen memoir explores the resilience of the human spirit. I literally could not stop reading From Turmoil to Triumph.

How often have you made specific plans for your life and things turned out differently? Was it a place you desired to visit, a class you have been wanting to take, or simply a quiet evening at home? There are times that our plans can be deferred or life-changing without notice, unexpectedly changing your life forever. These unforeseen events in life can be the very blessing that will position you to be a blessing, something Author Sharel E. Love shares in, "Limitless Through My Limitedness: A Personal Testimony.” Going from assisting with the care of her terminally ill father to needing a...

Born with severe brain defects, Suzy was sentenced to a life of “nevers.” With the unwavering support of her mother, Jane, and extended family, Suzy’s miraculous journey has given many experts reason to question the medical textbooks that have been written. From predictions that she would never walk, talk, or function in society, Suzy overcame all these obstacles with determination and perseverance—not even allowing final-stage renal failure at the age of twenty-four to deter her.

Randy Pierce was 22 years old, fresh out of college, and thriving at an excellent job. His promising future seemed certain. Then, in just two short and devastating weeks, an unexpected neurological disorder plunged him into blindness. Randy, believing his future had vanished in the blink of an eye, wondered, “How can my life have meaning now?” Before he could fully answer, he had further to fall. Blindness was far from the worst challenge he would face. See You at the Summit is Randy’s uplifting personal account of his journey through adversity to accomplishment.

As a 14-year-old psych ward patient, Harry realized he had a choice: let anorexia keep ruining his life or fight back against everything his mind told him was true. Now 22 years old, Harry delicately pieces together how his mind derailed to that point, what’s happened since he made his choice, and most importantly, what it’s taught him about life and how best to live it.

Barbara Anderson narrates with brutal honesty the day-to-day experience of having a child with disabilities: the challenges inside and outside the home, health and life complications, the shifting priorities, the daily Mt. Everest-sized struggle of having a child with an—until now—irreversible diagnosis such as infantile cerebral palsy.

A moving story about how autism and a shared appreciation for superheroes brought two brothers together. Author Josh Stehle learned everything he knows about superheroes from his older brother and best friend, Zach. From the worlds they live in, to the writers who created them, and studios who produced them--Zach is an expert in all things superhuman and heroic. He is also on the autistic spectrum.