Disability Memoir

Do you like sex, drugs, and rock 'n' roll? Do you know what jails, institutions, and death are all about? I don't want to be controlled, but can I control myself? Who says I have to live by society's rules?

The world spun and rolled as I collapsed at Macy’s in San Francisco to the voices of Christmas carols being sung and bells ringing. Fresh out of the ICU and a week later, a beige man gave me a beige folder with a dark diagnosis that would color the rest of my life - multiple sclerosis. This set off a tidal wave, a tsunami inside of me that ravaged my body and crushed my lungs. The MS Diaries is a memoir that seeks to impart the journey inside one man’s mind struggling with a severe chronic illness through uncensored personal anecdotes and humorous situations.

Challenging the view that autism is something that needs to be ‘cured', Virginia Bovell testifies to the extraordinary care Danny has received for over 30 years and the everyday kindness and decency of the people – ‘the band of angels' – that surround him. She asks us to consider what makes a thriving individual versus an inadequate one; what it means to be ill versus what it means to not to conform; what roles society values and rewards; and how humans might flourish outside of failing political and economic systems.

During an ordinary Fall afternoon, Kimber Hanchey-Ogden was delivered devastating news: Seth, her 17-year-old son, had been hit by a car and airlifted to a hospital! Having sustained a traumatic brain injury, doctors told her that if Seth made it, he would never be able to walk or talk; he would not remember his past or understand humor. And that was just for starters.

This is Nadina LaSpina's story - from her early years in her native Sicily, where she contracts polio as a baby, a fact that makes her the object of well-meaning pity and the target of messages of hopelessness, to her adolescence and youth in America, spent almost entirely in hospitals where she is tortured in the quest for a cure and made to feel that her body no longer belongs to her, and to her rebellion and her activism in the disability-rights movement.

Fred Rutman was certainly up against it. It being the Grim Reaper. The Reaper unleashed its full arsenal, pitting Fred against much of the medical system he trusted with his life. Even if Fred won the initial battles, could he win the war? The Summer I Died Twenty Times is a medical trauma memoir unlike any other. In one package, Fred Rutman provides all the overcoming adversity, resilience and beating the odds a listener expects. With a side of sarcasm and humor. He may not be the hero you expected. He just might be the hero you need.

In "How I Survived and Thrived with ADHD," author Anais Fournier offers a heartfelt and insightful journey through her life as a 19-year-old college student with ADHD. With a refreshing and empathetic approach, Anais shares her experiences, thoughts, and reflections about living with ADHD, aiming to redefine how we perceive neurological disorders and, ultimately, ourselves.

On Good Friday 2010, Melanie Reid fell from her horse, breaking her neck and fracturing her lower back. She was 52. Paralysed from the top of her chest down, she was to spend almost a full year in hospital, determinedly working towards gaining as much movement in her limbs as possible and learning to navigate her way through a world that had previously been invisible to her.

We think of perception as a passive, mechanical process, as if our eyes are cameras and our ears microphones. But as neurobiologist Susan R. Barry argues, perception is a deeply personal act. Our environments, our relationships, and our actions shape and reshape our senses throughout our lives. This idea is no more apparent than in the cases of people who gain senses as adults. Barry tells the stories of Liam McCoy, practically blind from birth, and Zohra Damji, born deaf, in the decade following surgeries that restored their senses.

What if you found out in mid-life that you were autistic? Kathleen was diagnosed in midlife with autism, and in her new book, U Don’t Seem Autistic, she bravely shares her personal story. This is a story of empowerment by the discovery of autistic identity, at last! By sharing the pitfalls she has experienced up to mid-life and their relationship to autism, she hopes to help others to seek a diagnosis, as she states women are missed or misdiagnosed due to the gender inequities of diagnosis.

In "You're Not Doing It Right," Ellen Patnaude bravely opens the door to the haunting reality of Lewy body dementia (LBD) and unravels its profound impact on families. One of the most common types of dementia after Alzheimer's disease, LBD is marked by fluctuations in cognition, hallucinations, and motor symptoms. The journey begins with subtle warnings of small changes in her mother's behavior that worry Patnaude's father, but go unnoticed by the author and her sibling.

In the spring of 1974, as the last American troops were being pulled out of Vietnam, Ron Kovic and a small group of other severely injured veterans in a California VA hospital launched the American Veterans Movement. In a phenomenal feat of political organizing, Kovic corralled his fellow AVM members into staging a sit-in, and then a hunger strike, in the Los Angeles office of Senator Alan Cranston, demanding better treatment of injured and disabled veterans.

At age 54, Chris Monnette is diagnosed with neovascular macular degeneration, an incurable retinal disease that slowly robs him of his eyesight. As each cell in his macula dies and his vision diminishes, he is forced, literally and figuratively, to see the world through different eyes. Raised in the shadow of an emotionally stifled father, Chris learns early on to mirror the belief that vulnerability equals weakness. A piercingly honest meditation on the emotional legacy of stoicism, Seeing Clearly is much-needed proof that being a man and being vulnerable are one and the same.

Blinded at age three, Mike May defied expectations by breaking world records in downhill speed skiing, joining the CIA, and becoming a successful inventor, entrepreneur, and family man. He had never yearned for vision. Then, in 1999, a chance encounter brought startling news: a revolutionary stem cell transplant surgery could restore May's vision.

Arriving in the UK from Jamaica at the tender age of 14, Keisha shares her empowering lived experiences growing up with undiagnosed Dyslexia and Dyspraxia, while facing several intersectional challenges that include culture, race, and the UK education system.

Spoke by Spoke takes the listener on one woman's journey to reinvent herself following a hit-and-run accident which left her back broken and her bike crumpled by a speeding motor vehicle. The stories Terry shares will take you from the depths of despair and the edges of darkness to profound realizations about what we are all capable of. Terry's perseverance and resilience - fueled by her amazing spirit - show us that whatever hand we're dealt, we always have the choice to live a wholehearted life.

A late bloomer’s coming-of-age memoir asks how does one accept and free themselves from visible and invisible disabilities and still retain their sense of connection and humor? Nothing Special is a disarmingly candid tale of two sisters growing up in the 1970s in rural Connecticut. Older sister Chris, who has Down syndrome, is an extrovert, while the author, her younger, typically developing sister, shoulders the burdens and grief of her parents.

When someone would tap along and rescue me from being sandwiched between these two hardbacks, sorry, did I frighten you? You never heard or seen a talking book. Well, me either. The majority of the time, I am the only one in the room, or shall I say, “on the shelf”? So many humans walk right past me, playing blind games by pretending not to see that the struggle is real. Talk about the lack of accessibility.

Owen-known to his family as "little buddy" or "Little B"-has a rare genetic disorder that leaves him largely confined to a wheelchair. Before being united with Haatchi, Little B was anxious and found it difficult to make friends. Haatchi-an adorable Anatolian Shepherd puppy-was abused and left for dead on railroad tracks. He was struck by an oncoming train, and although his life was saved, his leg and tail were partially severed. Haatchi was left massively disabled and totally dispirited.

In January 2016, life took an unexpected turn for Marilyn Miller Lowry when a stroke abruptly had her asking those questions—and more. In the years since, Lowry examined her life and made dramatic changes that opened up more possibilities than she ever imagined. Grateful to be able to author A Stroke of Magic, Lowry uses her background as a counselor to share candid observations of the trauma that comes with unexpected physical disability.