Disability Memoir

It never gets better, but it does get easier. That’s the first thing Roz says to anyone who asks him for advice. Anyone who’s fighting like hell, just hanging on or putting the pieces back together. When you’re broken, fixed becomes an obsession.

Diagnosed with Irritable Bowel Syndrome (IBS) at 12, Kira believed she could never backpack away from everything that kept her stomach pain in check. But 13 years later, she hiked the entire 211-mile John Muir Trail — in the face of a debilitating flareup, a breakup, and a gut-wrenching parasite. Kira's (mis)adventures overcoming chronic pain among the breathtaking Sierra Nevada helped her rediscover everything her body was capable of. And in the highs and lows, the beauty and pain, the perseverance and regret, she came to understand true resilience. All to inspire you, the reader, to ...

Having grown up on their great-grandfather’s stories, Royd Tolkien and his brother, Mike, have always enjoyed adventures. So when Mike is diagnosed with motor neurone disease, also known as ALS, the brothers decide to use the time they have left to tick off as much as possible from Mike’s bucket list, from remote camping in Norway to travelling through Royd’s beloved New Zealand. Yet, when Royd loses Mike, he discovers his brother had been writing another kind of bucket list: 50 things he wanted Royd to do after his death.

Inside My Outside: An Independent Mind in a Dependent Body provides an in-depth look into the life of a young woman with cerebral palsy who cannot walk or talk but who uses an electronic device for communication. This memoir covers three full days, from morning to night, in Sara Pyszka’s life, providing glimpses of past relationships, friendships, schooling, and outrageous stories about the challenges of hiring, firing, and working with personal care assistants.

How does an Unlikely Triathlete continue to exercise during a global pandemic? All this whilst being the Head of Fundraising for an NHS charity? It seems impossible doesn't it? Yet, Deborah continues with her tenacity to keep going as an athlete in the virtual world.

What would your life look like if you measured success by your improvements instead of your victories? Chris Nikic, the first person with Down syndrome to ever complete an IRONMAN® triathlon, inspires others to achieve their goals by getting one percent better better every day.

At first glance, Josh Hanagarne seems an improbable librarian. He stands 6'7", competes in strongman contests, and was diagnosed in high school with Tourette's syndrome. But books are his first love - Josh's earliest memories involve fantastic adventures between the pages of Gulliver’s Travels and a passionate infatuation with Fern from Charlotte’s Web. Everything in Josh’s life - from his Mormon upbringing, to finally finding love, to learning to control his tics through lifting - circles back to a close connection with books.

Hey guys, you might know me already from one of my social media channels where I talk about the highs and lows of living with Tourette's syndrome. I've loved sharing those times with you and - as there are lots of things I can't fit into a 60-second video - I've decided to write a book! It's the full story of how I came to be diagnosed and how having Tourette's has changed my life. Writing it has given me an opportunity to talk about things I haven't felt ready to share before - for some reason it's easier to put down private things in written words than in a video!

Told with shocking honesty and in unbelievable detail, Bipolar: A Gift of Thorns is a profoundly insightful memoir that shines a light on one woman’s courageous journey and the stigma of bipolar disorder.

In 1958, Riva is one of the first children born with spina bifida to survive. Her parents and doctors are determined to "fix" her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured. Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture.

When PhD candidate Sarah Vallance is thrown from a horse and suffers a jarring blow to the head, she believes she walks away unscathed. The next morning, things take a sharp turn as she’s quickly led from work to the emergency room. By the end of the week, a neurologist delivers a devastating prognosis: Sarah suffered a traumatic brain injury that has caused her IQ to plummet, with no hope of recovery. Her brain has irrevocably changed.

After a normal, healthy, full-term pregnancy, Margaret Moore's parents Anne and Terrence were shocked as a prolapsed umbilical cord left their daughter unable to breathe on her own. Margaret, nicknamed Meg, was not expected to live through the night and began to breathe on her own by the next day—a phenomenon that medical personnel deemed a miraculous recovery. Meg came home with a physical disability Cerebral Palsy and permanent dependence on others for help with feeding, dressing, hygiene, and transfers to and from her wheelchair and walker.

In this powerful new history, New York Times bestselling author Max Wallace draws on groundbreaking research to reframe Helen Keller’s journey after the miracle at the water pump, vividly bringing to light her rarely discussed, lifelong fight for social justice across gender, class, race, and ability. Peeling back the curtain that obscured Keller’s political crusades in favor of her “inspirational” childhood, After the Miracle chronicles the complete legacy of one of the 20th century’s most extraordinary figures.

Sipping Dom Pérignon Through a Straw is an inspirational and truly intersectional memoir from global humanitarian and disability-justice advocate Eddie Ndopu—a queer, Black wheelchair user. Ndopu’s incredible story begins with his childhood being raised by a single mother fleeing Apartheid South Africa before rocketing through every boundary put in front of him—because of his disability, his ethnicity, and his sexuality—to eventually hold official positions at both the United Nations and the World Economic Forum.

In 1895, a specialist straps five-year-old Katharine Hathaway, then suffering from spinal tuberculosis, to a board with halters and pulleys in a failed attempt to prevent her from becoming a “hunchback” like the “little locksmith” who does odd jobs at her family’s home. Forced to endure her confinement for ten years, Katharine remains immobile until age fifteen, only to find that none of it has prevented her from developing a deformity of her own.

When Jeremy and Emily Freeman’s teenage son Caleb was in a devastating car accident, doctors gave him a 10 percent chance of survival. Fear of losing a child was all too fresh for the Freemans—their seven-year-old son, Trey, had died just four years earlier from a genetic immunodeficiency. But God. In #butGod Jeremy shares the incredible story of Caleb’s recovery, the darkness that nearly overtook their family in the waiting, and the #butGod movement that captured the prayers of Christians around the world.

Annie and Rolf Lulloff were entering an exciting stage of life in 1976 when the first signs of health issues that lie ahead for Annie began to emerge. A sudden loss of sense of smell, severe anxiety attacks, vision issues, and other neurological challenges piled up, eventually culminating in a diagnosis of Parkinson’s disease on New Year’s Eve, 1989. But the Lulloffs were not about to let Parkinson’s get the best of them.

Learning to adapt to life after being diagnosed with chronic pain and illness is extremely difficult. Life as you knew it, along with your hopes and dreams for your life, literally gets turned upside down in an instant. This comes with a lot of deep complicated emotions from grief, sadness, anger, frustration to living in a constant state of uncertainty and stress. Most people assume that if you get sick, a medical professional like Dr. House will work endlessly until they have answers and a cure so you can go back to living the life you used to know.

Our aim with this narrative is to share our journey through the labyrinth of cancer treatment—the decisions we faced, the paths we chose, and, most importantly, the lessons we learned. We hope to offer guidance, support, and perhaps a sense of solidarity to others who find themselves on a similar journey. This is not your typical medical guide; it is a well-researched companion for every aspect of your cancer journey and a deeply personal account of battling cancer from the perspective of a spouse.

At the age of 27, Whitney Dafoe was forced to give up his life as a photographer who traveled the world. Bit by bit a mysterious illness stole away the pieces of his life: First, it took the strength of his legs, then his voice, and his ability to eat. The Puzzle Solver follows several years in which he desperately sought answers. Whitney's father, Ron Davis, PhD, a world-class geneticist at Stanford University whose legendary research helped crack the code of DNA, suddenly changed the course of his career in a race against time to cure his son's debilitating condition.