Disability Memoir

When Pepper Stetler was told that her daughter who has Down Syndrome would be regularly required to take IQ tests to secure support in school, she asked a simple question: why? In questioning the authority and relevance of the test, Stetler sets herself on a winding investigation into how the IQ test came to be the irrefutable standard for measuring intelligence. The unsettling history causes Stetler to wonder what influence this test will have over her daughter's future and whether Louisa should be taking it at all.

In a single moment in time, Garret Frey was transformed from an active and energetic four-year-old to a quadriplegic, ventilator-dependent boy who struggled to make sense of a world in disarray. For seven years, Garret worked with Clinical Psychologist Dr. Karen Pirnot as Garret learned that his mental powers could help compensate for the loss of body function. As I Am details the struggles of Garret's mother to advocate for a "normal" childhood education for her son.

In a Lifetime Fight: Living with Cerebral Palsy author Amanda Forry/Fino invites listeners to follow her journey towards healing and hope. After suffering a disabling accident and enduring a lifetime of abuse, Amanda is forced to rely on her own strength and courage to confront the traumas of her past and to find a path forward.

By combing through the journals that Hannah has kept for much of her life, this collection of narrative essays delivers a fuller picture of her life, her experiences, and the things she's figured out about family, faith, love, sexuality, self-worth, friendship, and fame. Revealing what makes Hannah tick, this sometimes cringeworthy, poignant collection of stories is sure to deliver plenty of Hannah's wit and wisdom - and hopefully encourage you to try your hand at her patented brand of reckless optimism.

Imagine if you were to lose your sight? Would it feel like the end of everything worthwhile? There is a way forward. Once you realise that blindness is a word and not a sentence, life takes on a new perspective. There are ways to thrive with vision loss. This book reveals how to turn such a life-challenge into a lifestyle you can fully manage and enjoy.

Andrew, 8, is autistic and bilingual. He speaks English and Chicken. With words limited by autism, Andrew lives in a fantastic world where chickens talk and superheroes come alive. But when he tells his pet chicken Frightful that his body is trying to kill him, it launches Andrew's family and an entire medical community into a decade-long quest for answers. This beautiful, fierce, and refreshingly honest memoir takes listeners on a mother's journey through the complex landscape of modern medicine to discover the healing bond between a boy and Frightful, the chicken who saves them all.

Operated on as an infant, without anesthesia, Wendy P. Williams began life at war with her body. There were tubes everywhere, in and out of every opening, her mother reminded her on every anniversary of her surgery. Autobiography of a Sea Creature takes listeners on Williams’ difficult sensory journey toward healing, as she communes along the way with horseshoe crabs, dolphins, and other marine life that taught her the restorative power of beauty, resilience, and interdependence.

Rachel Kolb was born profoundly deaf the same year that the Americans with Disabilities Act was passed, and she grew up as part of the first generation of deaf people with legal rights to accessibility services. Still, from a young age, she contorted herself to expectations set by a world that prioritizes hearing people. So even while she found clarity and meaning in American Sign Language (ASL) and written literature, she learned to speak through speech therapy and to piece together missing sounds through lipreading and an eventual cochlear implant.

Here is the inspiring story of a man who overcame childhood polio to live an adventure-filled life as captain of Maine's most famous windjammer, the schooner Adventure, now a national historic landmark in Gloucester, Massachusetts. Captain Jim shares his adventures afloat, his battles with bureaucracy, and even how he created one of Maine's most unusual restaurants.

Jon Sadler was four when he had his first seizure following an episode of high fever. That made him the object of constant concern to his family and dictated almost every decision he made. With medication, Jon was deemed seizure-free for several years, though his speech was permanently affected. After a college sailing accident, he had his first grand mal seizure (loss of consciousness and violent muscle contractions).

Nineteen people from across the globe, ranging in age from 20 to 70-plus, tell their stories of living and thriving in diverse fields - in sport, the arts, medicine, business, and more. With refreshing frankness, they share their successes along with their struggles - grit is the one characteristic they all have in common. These are not stories of people overcoming disability - they’re stories of people accommodating disability while pursuing their dreams. Pure Grit shines a light on boundless possibility whatever the individual challenge.

In this intimate story of relationship resilience, marine biologist Beth Mathews’s adventurous life as a professor and mother in Alaska is upended when her healthy husband is slammed by a rare type of stroke. Jim’s radical approach to recovery clashes with Beth’s instinct to keep him safe at home and sets them on a collision course as he insists on ambitious sailing expeditions with Beth and their young son in Alaska’s magnificent yet unforgiving waters.

For over twenty years, Dara Baldwin has often been the only person of color in the room when significant disability policy decisions are made. Disenfranchisement of people of color and multi-marginalized communities within the disability rights community is not new and has left many inside the community feeling frustrated and unheard. In Demanding Solidarity, Baldwin candidly shares her journey to becoming a disability activist and policymaker in DC while critiquing the disability rights community.

Despite a childhood affliction that left James Cabezas with the grim knowledge that he might one day go blind, he led a courageous career in law enforcement for more than four decades. With his vision intact, Jim proudly wore a police uniform, tracking drug dealers, thieves, and an armed robber in the precarious days before Baltimore cops wore bullet proof vests. He performed his duty relentlessly, despite interference from corrupt, racist and inept cops.While the world’s finest eye doctors kept him from going blind, Jim worked as a deep covert, driving a cab in Baltimore’s notorious ...

As director of legendary Pommery Champagnes, Philippe Pozzo di Borgo was not generally someone in the habit of asking for help. Then, in 1993, an accident left him a quadriplegic. Passing his days hidden in his Paris townhouse, Philippe found himself the modern equivalent of an “untouchable.” The only person who seemed not to be bothered by Philippe’s condition was someone who had been marginalized his entire life - Abdel, the unemployed, uninhibited immigrant from the outskirts of society who would become Philippe’s caretaker.

At twenty-four, Arnold Beisser was a recent medical school graduate and a nationally ranked tennis player. But overnight a devastating bout of polio left him permanently paralyzed from the neck down and dependent on an iron lung to draw his next breath. Polio robbed Arnold Beisser of his strength, his athletic ability, and almost his life. Yet he discovered in this unthinkable trap not only the expected sadness and despair, but wonder, delight, and the pleasure of everyday living.

My name is Joseph A. Peragine. I am a paranoid schizophrenic. On October 22, 2000, I tried to kill myself in a severely hallucinogenic state due to undiagnosed paranoid schizophrenia. I was suffering from this illness for many years leading up to that day. Every October since I started my recovery in 2000, I reflect on my life and am extremely thankful that I was fortunate enough to have been given a second chance.

I am not trying to be a role model, just a possibility. There are obstacles, and people may not always treat you properly, but there is progress. My story is one of many that doesn't choose death over paralysis. It's just a story that doesn't get told often enough.

Amanda Harris presents her inspiring autobiography. Travel with her as she shares her life experiences from diagnosis of a visual impairment, at only a few weeks old, to becoming a successful business owner and motivational speaker. An honest, moving and funny story highlighting transformation from the only disabled child in the playground to a strong independent woman.

Twenty-three-year-old Ardra Shephard is sleeping with the wrong guy, living in a crappy apartment, and spending money she doesn't have on designer shoes, boozy brunches, and weekends in NYC. Making mistakes while you figure stuff out is what your twenties are all about. Then a doctor tells Ardra she has MS, and those two letters split her life into a Before and After.