Imagine being told by a physician that your 2 year old daughter will probably never finish school, be able to drive, have a career and will possibly be institutionalized for schizophrenia. Back in 1994 this is what Cathy was told about her daughter Nadia during a routine doctor's appointment. They had just received the confirmation that Nadia was diagnosed with 22q and within this episode you will hear about Cathy and Nadia’s 22q journey. Stories like Nadia’s can help raise awareness about the potential in every person, no matter what challenges they may face. Cathy and Nadia’s story also sheds light on the importance of parental advocacy, the strength of support networks, and the role of early intervention and therapy. Nadia is now in her 30’s. She has a career as a photojournalist for her local paper and I am happy to report that her physician’s prediction back in 1994 was completely wrong.

This episode was recorded on October 16, 2023

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Within this episode we discussed:

• • Heart Surgery right aortic arch, pneumonia, aspirating, ear tubes, pallet surgery,

  • UCLA 22q study

  • Daytona state college - photo program

  • Nadia’s Photojournalism YouTube page: https://youtu.be/qxgbBe_Kmlc?si=gXU4J3Eul5wKoTAM

  • https://globalgenes.org/blog/a-young-womans-story-of-living-with-22q11-2-deletion-syndrome/

  • @nadiarosephotos

If you would like to contact the 22q Podcast with any questions, comments or if you are interested in being on this podcast email Becky at 22qpodcast@gmail.com. Don't forget to subscribe and share this podcast to help raise awareness about 22q. And never forget 22q family that YOU are not alone.

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