• Ep. 4- From Athlete to Advocate: Racquel’s Lupus Story

  • May 8 2024
  • Length: 22 mins
  • Podcast

Ep. 4- From Athlete to Advocate: Racquel’s Lupus Story

  • Summary

  • After qualifying for the Olympic trials twice, Racquel’s diagnosis of systemic lupus erythematosus in 2004 presented challenges that got in the way of her athletic lifestyle. Wanting no one else to feel alone in their journey, Racquel founded Lupus in Color, an advocacy group dedicated to supporting people living with lupus.

    Join Racquel as she describes recognizing symptoms, feeling lost and scared at diagnosis, working with her doctor to care for her lupus, and becoming an advocate for herself and others living with lupus.

    Among the highlights in this episode:

    02:18: Racquel Dozier shares her initial diagnosis with rheumatoid arthritis in 2002 and her subsequent diagnosis with lupus in 2004

    03:21: Racquel details her severe symptoms and the proactive approach of her doctor in diagnosing lupus

    04:44: Racquel explains how her feelings of isolation and lack of support led her to create Lupus in Color, an online and local support group that has grown into an international organization

    07:25: Racquel discusses the importance of self-advocacy and building a strong relationship with her doctor

    09:30: Racquel and Adam Kegley, Associate Director of Global Partnerships at GHLF, discuss the importance of trust, honesty, and collaboration in the doctor-patient relationship

    12:11: Racquel describes her approach to managing lupus, focusing on the concept of "silencing" lupus and shares about the importance of understanding personal triggers and maintaining a balanced lifestyle is emphasized

    14:30: Racquel offers practical advice for coping with lupus on a day-to-day basis, including keeping a journal and making incremental changes to diet, exercise, and mental health practices

    16:42: Racquel discusses the need for patience and the evolving nature of lupus and its treatments

    Contact Our Host

    Adam Kegley, Associate Director, Global Partnerships at GHLF: akegley@ghlf.org

    A podcast series produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

    We want to hear what you think. Send your comments or questions to podcasts@ghlf.org

    Remission Possible is a podcast series produced by the non-profit Global Healthy Living Foundation and its arthritis patient community CreakyJoints. This episode was made possible with support from AstraZeneca.

    Learn more at ghlf.org/remission-possible/

    See omnystudio.com/listener for privacy information.

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