Send us a text

Emma Rich: Battling Aphasia and Advocating for Neuro Rehab

In this episode, Emma Rich, Charity Coordinator at Say Aphasia, shares her harrowing journey with severe brain injury and subsequent aphasia. She recounts her critical medical emergency, rehabilitation experiences, and the crucial role of neuroplasticity in her recovery. Emma discusses the importance of speech therapy, community support groups, and the uneven access to rehabilitation services. Advocating for better support and employment opportunities for brain injury and stroke survivors, Emma emphasizes the need for education, hope, and inclusive societal attitudes toward individuals with neurological conditions.

00:00 Introduction and Welcome
00:16 Emma's Brain Hemorrhage Experience
01:51 Recovery Journey Begins
03:45 Rehabilitation and Neuroplasticity
05:58 Challenges and Support Systems
10:21 Involvement with Say Aphasia
18:43 Employment and Inclusivity
29:34 Hope and Rehabilitation
31:54 Conclusion and Final Thoughts

Say Aphasia website: https://www.sayaphasia.org

Support the show

Support the show: https://pay.gocardless.com/BRT0003MF6G9SBF

To watch Jonathan’s film: https://tipofmytonguefilm.com

http://x.com/buffaloloungeuk
https://www.linkedin.com/in/jonathanhirons/

The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Send us a text

Overcoming Aphasia and the Importance of Carers

In this episode, the host reflects on past events and highlights key themes such as surviving a critical health incident in Las Vegas, the significant role of communication in recovery from strokes, and the challenges and strategies for living with aphasia. The episode also emphasizes the importance of unpaid carers, their economic contribution, and the need for perseverance in finding effective communication methods post-injury. The narrative draws an analogy to living in a foreign country to convey the experience of aphasia, highlighting its often hidden nature and the frustration of not being recognized for having a serious condition.

00:00 Reflecting on Past Episodes
00:10 A Harrowing Experience in Las Vegas
00:40 The Importance of Communication Post-Stroke
00:52 Meet Pete Cody: A Story of Resilience
01:05 Tips for a Healthy Brain
01:31 The Role and Impact of Unpaid Carers
02:07 Understanding Aphasia: A Hidden Disability

Support the show

Support the show: https://pay.gocardless.com/BRT0003MF6G9SBF

To watch Jonathan’s film: https://tipofmytonguefilm.com

http://x.com/buffaloloungeuk
https://www.linkedin.com/in/jonathanhirons/

The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Send us a text

Journey Through Aphasia: An Interview with Colin Lyle

In this episode of the On the Tip of My Tongue podcast, Colin Lyle, founder of the Say Aphasia charity, shares his powerful journey from experiencing a stroke and developing aphasia to actively supporting others with the condition. Colin talks about his stressful lifestyle that led to his stroke, the challenges he faced during recovery, and his efforts in starting the Say Aphasia charity. The episode covers the importance of speech and language therapy, the challenges of living with aphasia, and the mission to raise awareness and support for those affected. Colin’s inspiring story highlights the significance of community and peer support in navigating life with aphasia.

00:00 Introduction to Aphasia
02:22 Colin's Stroke and Initial Challenges
03:45 Speech and Language Therapy Journey
07:47 Founding Say Aphasia Charity
12:04 Expanding the Charity and Overcoming Hurdles
23:09 Future Plans and Reflections
31:33 Conclusion and Resources

Say Aphasia

The Say Aphasia Charity provides supportive drop-in groups for people with aphasia in the UK. It is run by people with aphasia for people with aphasia.

Aphasia is not a well known condition and so people with this communication disability can feel alone and isolated from their community.

Our aim is to provide continuous support in a social environment with people who are experiencing similar life changes.

Our charity makes a difference to people living with aphasia by:

• Offering companionship and support
• Helping to adjust to living with aphasia.
• Meeting people who are experiencing a similar life change.
• Making new life long friends.
• Gaining tips and advice from others with aphasia.
• Gaining confidence to socialise and communicate as best they can.
• Re-gaining independence as much as they can.
• Helping to reduce loneliness.
• Providing support in a relaxed and welcoming environment.
• Offering art class and singing class as a therapeutic way to relax and express themselves.

#AphasiaAwareness

#StrokeRecovery

#SayAphasia


https://www.sayaphasia.org

Support the show

Support the show: https://pay.gocardless.com/BRT0003MF6G9SBF

To watch Jonathan’s film: https://tipofmytonguefilm.com

http://x.com/buffaloloungeuk
https://www.linkedin.com/in/jonathanhirons/

The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Send us a text

Support the show

Support the show: https://pay.gocardless.com/BRT0003MF6G9SBF

To watch Jonathan’s film: https://tipofmytonguefilm.com

http://x.com/buffaloloungeuk
https://www.linkedin.com/in/jonathanhirons/

The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Send us a text

On the tip of my tongue S2 E5: Discover the journey of overcoming aphasia—a rare look within as the fog lifts, and life begins anew. Tune in to our latest episode to hear Colin Lyall's inspiring story.

#AphasiaAwareness

#StrokeRecovery

#SayAphasia


https://www.sayaphasia.org

Support the show

Support the show: https://pay.gocardless.com/BRT0003MF6G9SBF

To watch Jonathan’s film: https://tipofmytonguefilm.com

http://x.com/buffaloloungeuk
https://www.linkedin.com/in/jonathanhirons/

The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Send us a text

Understanding the Role of the Royal College of Speech and Language Therapists

In this episode of the 'Tip of My Tongue' podcast, host Jonathan and Rob engage in a detailed conversation with Derek Munn, the Director of Policy and Public Affairs at the Royal College of Speech and Language Therapists. Munn shares insights on his role, which involves working with UK governments, managing legislative policies, and advocating for speech and language therapy services. He discusses the history and evolution of the Royal College, highlighting its formation, the role of speech therapists, and the importance of collaborative practices. The conversation also delves into the challenges of treating conditions like aphasia and the need for comprehensive communication support systems. Munn underscores the significance of raising public awareness about various speech and language disorders and the necessity of integrating speech therapists into multidisciplinary healthcare teams.

00:00 Introduction and Guest Welcome
01:19 Overview of the Royal College of Speech and Language Therapists
02:37 History and Evolution of Speech Therapy
05:02 Modern Speech Therapy Practices
06:22 Challenges in Speech Therapy and Aphasia Awareness
12:23 Workplace Inclusivity for People with Communication Challenges
21:41 Raising Awareness and Advocacy
31:37 Conclusion and Final Thoughts

https://www.rcslt.org

Support the show

Support the show: https://pay.gocardless.com/BRT0003MF6G9SBF

To watch Jonathan’s film: https://tipofmytonguefilm.com

http://x.com/buffaloloungeuk
https://www.linkedin.com/in/jonathanhirons/

The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Send us a text

Better Conversations with Aphasia: In-Depth with Dr. Suzanne Beek

In this episode, Dr. Suzanne Beek, Associate Professor of Language and Cognition at UCL, discusses her innovative therapy called Better Conversations with Aphasia. She explains how aphasia, a communication difficulty often resulting from stroke, affects conversations and the simple strategies her program employs to improve communication between people with aphasia and their loved ones. Dr. Beek also talks about the therapeutic techniques, including video feedback, that speech and language therapists use to facilitate better conversations. The conversation also highlights common communication issues, such as 'test questions,' and the need for greater awareness and support for speech and language therapy.

00:00 Introduction to Dr. Suzanne Beak and Better Conversations with Aphasia
00:13 Understanding Aphasia: Cognitive Effort and Communication Challenges
01:53 Dr. Suzanne Beak's Background and Research Focus
02:48 The Concept of Better Conversations
03:36 Implementing Better Conversations with Aphasia
05:57 The Role of Video Feedback in Therapy
07:55 Common Communication Challenges and Solutions
08:08 Addressing Test Questions in Conversations
10:37 The Emotional Impact of Aphasia
19:12 Raising Awareness and Media Representation
21:26 Different Types of Aphasia: Stroke vs. Primary Progressive Aphasia
34:09 Funding and Support for Aphasia Research
36:10 Training and Future Directions in Aphasia Therapy
41:18 Accessing Better Conversations with Aphasia
42:40 Conclusion and Final Thoughts

https://www.ucl.ac.uk/pals/research/language-and-cognition/language-and-cognition-research/better-conversations-lab

UCL Communication Clinic for people with aphasia and families
https://www.ucl.ac.uk/pals/ucl-communication-clinic

Twitter: https://x.com/BCAphasia

Support the show

Support the show: https://pay.gocardless.com/BRT0003MF6G9SBF

To watch Jonathan’s film: https://tipofmytonguefilm.com

http://x.com/buffaloloungeuk
https://www.linkedin.com/in/jonathanhirons/

The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

Send us a text

Overcoming Aphasia: Pete Cody's Journey and Community Impact

In this episode, we talk to Pete Cody, a former Mondelez Cadbury salesman who became a peer leader for Say Aphasia after a serious car accident left him with aphasia. Pete discusses the challenges he faced transitioning from a high-paced sales job to living with a communication disorder, and how he found purpose by running aphasia support groups in Darlington and Bishop Auckland. He shares stories of personal struggles, the importance of community support, and the growth and impact of the aphasia groups he leads. The conversation highlights both the isolation that can come with aphasia and the hope and connection found through dedicated support networks.

00:00 Introduction to Pete Cody and His Journey
02:15 Life Before and After the Accident
04:15 Transition to Running Aphasia Groups
05:49 Challenges and Support in Managing Aphasia
07:44 Community Engagement and Growth
14:49 Future Plans and Aspirations
18:24 Concluding Thoughts and Reflections

https://www.sayaphasia.org

Support the show

Support the show: https://pay.gocardless.com/BRT0003MF6G9SBF

To watch Jonathan’s film: https://tipofmytonguefilm.com

http://x.com/buffaloloungeuk
https://www.linkedin.com/in/jonathanhirons/

The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org