The D.A.N.I. Project

By: The D.A.N.I. Project by NeoBilities
  • Summary

  • Greetings Earthling! Fellow human and disability advocate Tessa Bathauer, LMSW, invites you to tune in each week as we attempt to explore a galaxy filled with disabilities. This broadcast is classified as The D.A.N.I Project is our way of attempting to enlighten earthlings, like yourself, about the complexities of living with a disability in your world. In this transmission, the universe awaits you! Throughout our exploration, we will amplify the voices of magnetic humans and illuminate the experiences of those living with disabilities. Our journey will transport us into a universe of disability-centered topics such as disability history, personal accounts, current events, pop culture, advocacy, social justice, and much more. We hope you tune into our frequency!
    Copyright 2022 All rights reserved.
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Episodes
  • Jay Trivedi | A Personal Account of Social Security Disability and Health Insurance
    Nov 15 2022

    Hey there Earthlings!

    Today we are beaming up rare disease warrior and advocate Jay Trivedi. In this episode, Jay shares his story of living with a rare disease called Congenital Central Hypoventilation Syndrome (CCHS). Jay's story sheds light on the financial implications of being disabled, the struggles of government benefits, and how social issues impact those with disabilities.

    Jay's Bio:

    My name is Jay, and I am currently 30 years old. I was diagnosed at birth with Congenital Central Hypoventilation Syndrome (CCHS). CCHS impacts our respiratory system and requires a mechanical ventilator when we sleep since we can't breathe normally. I have Bachelors's and an Associate degree in Business Administration. I work as Front End Team Member at Walmart. Also, I advocate for CCHS Family Network Inc.

    Jay's Information

    Facebook: Jay Trivedi

    Instagram: Jt.trivedi

    LinkedIn: Jay Trivedi

    Keep track of our intergalactic

    explorations by following us on The DANI. Project & NeoBilities Socials:

    Patreon: https://www.patreon.com/thedaniproject

    Instagram: neobilities

    Twitter: BilitiesNeo

    Facebook: NeoBilities

    Episode Transcript: Coming Soon

    *This podcast is for educational and entertainment purposes only. NeoBilities LLC.

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    33 mins
  • Nick Smit | Creating Your Own Destiny Through Purposeful Action
    Nov 1 2022

    Hey there Earthlings!

    Today we are beaming up the Rebel Ninja, Nick Smit. In this episode, Nick and Tessa explore empowerment, entrepreneurship, and creating your own destiny through purposeful action.

    Imagine a world in which people are self-motivated to achieve what they are truly capable of; A world where people don't hide behind masks but rather embrace authenticity; A world that is not only capable of change but grows from it. A world that can dance to its destiny. Our next speaker is definitely a rebel ninja with many titles – A teacher and mentor; A professional speaker and entrepreneur and even a dancer. He has presented a variety of workshops and alike, to an array of audiences, including universities and local and international companies. Most relate to disability advocacy, awareness and inclusion; the power of the mind and overcoming challenges. Joining us today is an award-winning speaker who activates, impacts and moves people to make these imaginings a reality.

    Nick's Information

    Website https://www.therebelninja.com

    Instagram: the.rebel.ninja

    Facebook: https://www.facebook.com/therebelninja

    Youtube: Coming Soon

    Keep track of our intergalactic

    explorations by following us on The DANI. Project & NeoBilities Socials:

    Patreon: https://www.patreon.com/thedaniproject

    Instagram: neobilities

    Twitter: BilitiesNeo

    Facebook: NeoBilities

    Episode Transcript: Coming Soon

    *This podcast is for educational and entertainment purposes only. NeoBilities LLC.

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    1 hr
  • Shabnam Rakhiba | Getting Real about Chronic Illness and Disabilities
    Oct 25 2022

    Hey there Earthlings!

    Today we are beaming up the chronic illness warrior Shabnam Rakhiba, GMBPsS, ACT.Accred.(AAAC). Shabnam is an empowerment and resilience coach for women with chronic illness, pain, and disability. Founder of Thorns & Roses coaching. Masters in Psychology. Qualified Life Coach, an Accredited practitioner of Acceptance and commitment therapy (third-wave CBT).

    This episode explores what it's like to live with chronic illness and disabilities. We dive into tricky subjects including: toxic positivity, navigating relationships with chronic illness, and honoring the emotional journey of living with chronic illness and disabilities.

    Shabnam's Bio:

    For 13 years (since my early twenties), I have lived with idiopathic chronic pain, with the latest plausible diagnoses being endometriosis and fibromyalgia. Throughout much of my adult life, I have been through it all – misdiagnoses, failed treatments and surgery, health-related anxiety, suicidal thoughts, being bed-ridden, and losing career prospects. Despite it all, I fought – and today I have expanded my understanding of wellness beyond the physical aspect to include emotional, psychosocial and spiritual healing. Wellness – feeling good in my skin, in body and spirit – is now my priority. Even though I still live with incomprehensible chronic pain after trying a plethora of allopathic and naturopathic protocols, I am now at peace, happy and successful. I thrive despite the pain, using a variety of psychological and practical strategies. As an empowerment and resilience coach, I help other women living with chronic pain and illness look beyond physical symptoms and take a holistic view of their healing. My practice is grounded in mindfulness, compassion, and Acceptance. I have worked with women with cancer, reproductive health challenges, autoimmune disease as well as congenital disorders. I am a co-author of the upcoming book 'Healing Chronic Pain.' My research manuscript on the lived experience of British South Asian women with endometriosis is also currently being prepared for publication in a peer-reviewed medical journal.

    Shabnam's Information

    Website: www.thornsandrosescoaching.com

    Instagram: Shabnam_Rakhiba

    Facebook: Unapologetic Women Collective-Chronic Illness Support

    Keep track of our intergalactic

    explorations by following us on The DANI. Project & NeoBilities Socials:

    Website: neobilities.com

    Instagram: neobilities

    Facebook: NeoBilities

    Twitter: BilitiesNeo

    Patreon: https://www.patreon.com/thedaniproject

    Episode Transcript: Coming Soon

    *This podcast is for educational and entertainment purposes only. NeoBilities LLC.

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    1 hr and 6 mins

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