Chronic Illness Memoir

A riveting and candid account of a young journalist's awakening to a life of chronic illness, weaving together her personal story with reporting to shed light on how Americans live with long-term diagnoses today.

Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood - and that's on top of dealing with your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see.

A silent epidemic of chronic illnesses afflicts tens of millions of Americans: These are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier.

Chronic pain, illness, and disability take so much away. Sometimes it seems as though they take everything we have ever loved and held dear. Our physical abilities and our jobs. Our current passions and future dreams. Our finances and our friends. Our sense of community and our ability to engage the world in ways we could before. Chronic pain takes away our sense of self and who we always thought ourselves to be. How in the world are we supposed to deal with this fact?

Brita grew up a competitive athlete, full of happiness and excitement for life. There wasn’t much that would take her out of a game as she constantly pushed her body to the limits. When she was unable to compete due to unknown and undiagnosed illness, she entered a world that was unfamiliar, and began to sink into a darkness she could never have imagined.

Trauma is a fact of life. Veterans and their families deal with the painful aftermath of combat; one in five Americans has been molested; one in four grew up with alcoholics; one in three couples have engaged in physical violence. Dr. Bessel van der Kolk, one of the world’s foremost experts on trauma, has spent more than three decades working with survivors. In The Body Keeps the Score, he uses recent scientific advances to show how trauma literally reshapes both body and brain, compromising sufferers’ capacities for pleasure, engagement, self-control, and trust.

In her harrowing, defiant, and unforgettable memoir, Sarah Ramey recounts the decade-long saga of how a seemingly minor illness in her senior year of college turned into a prolonged and elusive condition that destroyed her health but that doctors couldn't diagnose or treat. Worse, as they failed to cure her, they hinted that her devastating symptoms were psychological. The Lady's Handbook for Her Mysterious Illness is a memoir with a mission: to help the millions of (mostly) women who suffer from unnamed or misunderstood conditions.

One day, on her way to a date, Isabella Huffington gets hit by a bike. What begins as a concussion with a diagnosed recovery time of seven-to-ten days becomes more than two years of debilitating pain with no apparent end and a string of unhelpful doctor and specialist visits. In the wreckage, jobs are canceled. Leases are broken. There is no second date. What’s left is Isabella, her body, and her pain. Because the source of her pain cannot be located within the body, she is told over and over that her pain is psychosomatic. And Isabella believes it, over and over.

In this accessible and groundbreaking book—filled with the moving stories of real people—medical doctor and bestselling author Gabor Maté shows that emotion and psychological stress play a powerful role in the onset of chronic illness, including breast cancer, prostate cancer, multiple sclerosis, Alzheimer's disease and many others. An international bestseller translated into over thirty languages, When the Body Says No promotes learning and healing, providing transformative insights into how illness can be the body's way of saying no to what the mind cannot or will not acknowledge.

Alan Gordon, a psychotherapist and the founder of the Pain Psychology Center in Los Angeles, was in grad school when he started experiencing chronic pain and it completely derailed his life. He saw multiple doctors and received many diagnoses, but none of the medical treatments helped. Frustrated with conventional pain management, he developed Pain Reprocessing Therapy (PRT), a mind-body protocol that eliminated his own chronic pain and has transformed the lives of thousands of his patients.

If you’re tired of carrying the burden of pain and discomfort and you're fed up with the medical system having no answers for you, look no further. In Peace over Pain, Dr. Kevin Reese lifts the curtain on the medical monopoly and uncovers why they can only manage your chronic conditions. He goes on to provide his revolutionary solution for correcting the body quicker and more efficiently than any other therapeutic approach. Using his unique method, he claims the health burden can be eliminated in months, not years. This is healing wisdom ahead of its time!

Marian Schembari was thirty-four years old when she learned she was autistic. By then, she’d spent decades hiding her tics and shutting down in public, wondering why she couldn’t just act like everyone else. Therapists told her she had Tourette’s syndrome, obsessive-compulsive disorder, sensory processing disorder, social anxiety, and recurrent depression. They prescribed breathing techniques and gratitude journaling. Nothing helped. It wasn’t until years later that she finally learned the truth: she wasn’t weird or deficient or moody or sensitive or broken. She was autistic.

Allie Cashel has suffered from chronic Lyme disease for 16 years - but much of the medical community refuses to recognize her symptoms as the result of infectious disease. In Suffering the Silence: Chronic Lyme Disease in an Age of Denial, Cashel paints a living portrait of what is often called post-treatment Lyme syndrome, featuring the stories of chronic Lyme patients from around the world and their struggle for recognition and treatment.

On July 22, 2009, a special meeting was held with 24 leading scientists at the National Institutes of Health to discuss early findings that a newly discovered retrovirus was linked to chronic fatigue syndrome (CFS), prostate cancer, lymphoma, and eventually neurodevelopmental disorders in children. When Dr. Judy Mikovits finished her presentation the room was silent for a moment, then one of the scientists said, "Oh my God!" The resulting investigation would be like no other in science.

Dr. Judy Mikovits is a modern-day Rosalind Franklin, a brilliant researcher shaking up the old boys' club of science with her groundbreaking discoveries. And like many women who have trespassed into the world of men, she uncovered decades-old secrets that many would prefer to stay buried.

Finding Joy presents a comprehensive, practical guide for living your best life with chronic illness. This psychology self-help book integrates personal and professional insights to give you tools for handling various aspects of living with a chronic illness. There is also a chapter specifically for the loved ones and caregivers of the chronically ill. While this book is designed for anyone with a chronic illness, the spiritual content early in the book suggests the value of sticking to your faith and offers several Bible references.

The pain you suffer from fibromyalgia syndrome (FMS) is not in your imagination. FMS is a real medical problem that can be as debilitating and demoralizing as it is mysterious. Fibromyalgia for Dummies, 2nd Edition, brings you the latest scientific findings on the symptoms and causes of this disease and guides you toward proven, practical steps you can take to reduce or eliminate FMS-related pain.

Diagnosed with a disease that can't be reversed? Learn how to keep living life to the fullest. Have you received a terminal or chronic diagnosis? Can you ever find joy, peace, or fulfillment in these challenging conditions? The answer is a resounding yes. When author Jarem Sawatsky was diagnosed with Huntington's Disease, he found there were no guides for those living with incurable illness. He quit his job as a professor and devoted his life to exploring the possibilities of living with chronic conditions. Now he's bringing his findings and insights to you.

Legendary leadership and elite performance expert Robin Sharma introduced The 5am Club concept more than 20 years ago, based on a revolutionary morning routine that has helped his clients maximize their productivity, activate their best health and bulletproof their serenity in this age of overwhelming complexity. Now, in this life-changing guide, handcrafted by the author over a rigorous four-year period, you will discover the early-rising habit that has helped so many accomplish epic results while upgrading their happiness, helpfulness, and feelings of aliveness.

At the age of 27, Whitney Dafoe was forced to give up his life as a photographer who traveled the world. Bit by bit a mysterious illness stole away the pieces of his life: First, it took the strength of his legs, then his voice, and his ability to eat. The Puzzle Solver follows several years in which he desperately sought answers. Whitney's father, Ron Davis, PhD, a world-class geneticist at Stanford University whose legendary research helped crack the code of DNA, suddenly changed the course of his career in a race against time to cure his son's debilitating condition.