ABCs of Disability Planning

By: ABCs of Disability Planning
  • Summary

  • Frequently families like mine don't know what's available to help us, we're too focused on getting through our day-to-day. But even if we had time, we would need to know what to look for. It's my mission to introduce a new organization or individual serving those with disabilities every week. All views and opinions represented are my own. I am not writing on behalf of Capital Motion or Visible National Trust. Neither Capital Motion nor Visible National Trust endorse or in any other way support this content and podcast. This podcast is wholly owned and operated by me, Eric Jorgensen.
    ABCs of Disability Planning
    Show more Show less
activate_Holiday_promo_in_buybox_DT_T2
Episodes
  • Education, Expertise, and Empathy on your Medicaid Journey
    Jan 6 2025

    ECR Planning offers professional support to families needing to access long-term care Medicaid benefits in their loved one’s state. Step 1

    Meet with one of ECR's expert Benefits Advisors to determine eligibility and decide if it makes sense for your family to hire a Medicaid planner. If working with them is the right fit, you will move on to the application process. During this call, you may decide that a Benefits Consultation is more appropriate for your situation.

    Step 2

    You fill out a comprehensive intake questionnaire and discuss the answers with your Medicaid Specialist. You will have time to ask questions and clarify anything that doesn’t make sense. ECR's team then pulls together the necessary financial information to submit your completed application.

    Step 3

    ECR's team of experts and Certified Medicaid Planners™ are with you the entire time. If there is a need for other documentation as the state reviews your loved one’s application, they help you take care of that. They work with tenacity and compassion to advocate for your family until benefits are in place.


    Connect to learn more:

    Websites:

    eldercareresourceplanning.org

    medicaidplanningassistance.org

    Phone: 415-854-8653


    Kaiser Family Foundation (KFF): https://www.kff.org/


    For additional resources and more information about Visible you can find us here:

    Web: ⁠⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠⁠

    Podcast (ABC's of Disability Planning) - ⁠⁠⁠⁠https://anchor.fm/abcs-disability-planning⁠⁠⁠⁠

    Waypoints - ⁠⁠⁠⁠https://waypoints.substack.com/

    Show more Show less
    45 mins
  • Solving Medical Mysteries through Team Science
    Dec 30 2024

    The Undiagnosed Diseases Network (UDN) is a research study funded by the National Institutes of Health. Its purpose is to bring together clinical and research experts from across the United States to solve the most challenging medical mysteries using advanced technologies.

    Through this study, we hope to both help individual patients and families living with the burden of undiagnosed diseases and contribute to the understanding of how the human body works. Requirements for Online Application

    If you decide to apply for this study, you will need to answer a series of brief questions through our application portal, the UDN Gateway (link below), related to the following:

    • Contact information
    • Demographic information
    • Healthcare provider information (name, address, phone, fax, email)
    • Brief medical history questions
    • Previous evaluations
    • Travel limitations


    A study recommendation letter from a health care provider (for example, a specialist, primary care physician, nurse practitioner, or genetic counselor) is also necessary to submit the online application to the UDN. The letter must be written in English, signed, and on letterhead. A relative cannot write a letter. The study recommendation letter must include:

    • A summary of the applicant’s medical problems
    • Date when symptoms were first noticed
    • For pediatric patients: prenatal and birth history
    • Previous diagnoses
    • History of evaluations and testing
    • History of treatments and medications
    • Current medications
    • Family history
    • Healthcare provider’s diagnostic impressions

    We have prepared a sheet of information for you to share with your provider, as well as a set of example study recommendation letters.


    Please provide us with a 1-page patient narrative telling us your story from your perspective. We will have received the letter from your referring provider, but the narrative may help the UDN understand your medical history directly from you. Sometimes photos help the UDN team better understand the symptoms the applicant is experiencing. If you would like to provide a narrative and/or photo, please upload it to the application.

    Help Desk

    Phone: 1-844-746-4836

    email: UDNConnect.org

    For additional resources and more information about Visible you can find us here:

    Web: ⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠

    Podcast (ABC's of Disability Planning) - ⁠⁠⁠https://anchor.fm/abcs-disability-planning⁠⁠⁠

    Waypoints - ⁠⁠⁠https://waypoints.substack.com/

    Show more Show less
    43 mins
  • Connecting those with disabilities to the resources they need most
    Dec 23 2024

    NavigateMD provides a one-of-a-kind service to those with disabilities, their families, and others. Their platform connects these individuals with medical providers, businesses, non-profit organizations, and other resources that meet their needs. They understand that finding the help you need can often feel like a full-time job, resulting in high-stress levels and feeling overwhelmed. NavigateMD strives to make that a problem of the past with its easy-to-use, convenient, and time-efficient platform.

    For those with disabilities, their families, and others looking for resources:

    • Free to use.
    • Easily find all relevant resources that meet your needs.
    • Gain access to resources that you may otherwise not know about.
    • View medical providers, non-profit organizations, businesses, support groups, and many other resources, all in one place!
    • No more searching endlessly to find the help that you need. NavigateMD finds all resources that meet your criteria quickly and efficiently!
    • Enhances independence, reduces stress, promotes inclusion, and builds on community relations.

    For medical providers, businesses, and non-profit organizations:

    • Generates new opportunities with individuals who have been directly matched with you, based on their needs, and the services that you provide.
    • Basic accounts are free. They include the services that you offer, as well as your contact information.
    • Upgrade to a premium account for enhanced features such as: appearing above basic accounts in search results, gaining access to real-time data tracking for activity on your account, additional profile features, and much more.
    • Premium provider accounts can be considered a business marketing expense and could be tax deductible (consult your CPA).


    Connect to learn more:

    Website: https://navigatemd.com/

    Phone: 1-888-898-0230

    Email: info@navigatemd.com

    For additional resources and more information about Visible you can find us here:

    Web: ⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠

    Podcast (ABC's of Disability Planning) - ⁠⁠⁠https://anchor.fm/abcs-disability-planning⁠⁠⁠

    Waypoints - ⁠⁠⁠https://waypoints.substack.com/

    Show more Show less
    20 mins

What listeners say about ABCs of Disability Planning

Average customer ratings

Reviews - Please select the tabs below to change the source of reviews.