ECR Planning offers professional support to families needing to access long-term care Medicaid benefits in their loved one’s state. Step 1

Meet with one of ECR's expert Benefits Advisors to determine eligibility and decide if it makes sense for your family to hire a Medicaid planner. If working with them is the right fit, you will move on to the application process. During this call, you may decide that a Benefits Consultation is more appropriate for your situation.

Step 2

You fill out a comprehensive intake questionnaire and discuss the answers with your Medicaid Specialist. You will have time to ask questions and clarify anything that doesn’t make sense. ECR's team then pulls together the necessary financial information to submit your completed application.

Step 3

ECR's team of experts and Certified Medicaid Planners™ are with you the entire time. If there is a need for other documentation as the state reviews your loved one’s application, they help you take care of that. They work with tenacity and compassion to advocate for your family until benefits are in place.

Connect to learn more:

Websites:

eldercareresourceplanning.org

medicaidplanningassistance.org

Phone: 415-854-8653

Kaiser Family Foundation (KFF): https://www.kff.org/

For additional resources and more information about Visible you can find us here:

Web: ⁠⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠⁠

Podcast (ABC's of Disability Planning) - ⁠⁠⁠⁠https://anchor.fm/abcs-disability-planning⁠⁠⁠⁠

Waypoints - ⁠⁠⁠⁠https://waypoints.substack.com/

The Undiagnosed Diseases Network (UDN) is a research study funded by the National Institutes of Health. Its purpose is to bring together clinical and research experts from across the United States to solve the most challenging medical mysteries using advanced technologies.

Through this study, we hope to both help individual patients and families living with the burden of undiagnosed diseases and contribute to the understanding of how the human body works. Requirements for Online Application

If you decide to apply for this study, you will need to answer a series of brief questions through our application portal, the UDN Gateway (link below), related to the following:

• Contact information
• Demographic information
• Healthcare provider information (name, address, phone, fax, email)
• Brief medical history questions
• Previous evaluations
• Travel limitations

A study recommendation letter from a health care provider (for example, a specialist, primary care physician, nurse practitioner, or genetic counselor) is also necessary to submit the online application to the UDN. The letter must be written in English, signed, and on letterhead. A relative cannot write a letter. The study recommendation letter must include:

• A summary of the applicant’s medical problems
• Date when symptoms were first noticed
• For pediatric patients: prenatal and birth history
• Previous diagnoses
• History of evaluations and testing
• History of treatments and medications
• Current medications
• Family history
• Healthcare provider’s diagnostic impressions
• 
  

We have prepared a sheet of information for you to share with your provider, as well as a set of example study recommendation letters.

Please provide us with a 1-page patient narrative telling us your story from your perspective. We will have received the letter from your referring provider, but the narrative may help the UDN understand your medical history directly from you. Sometimes photos help the UDN team better understand the symptoms the applicant is experiencing. If you would like to provide a narrative and/or photo, please upload it to the application.

Help Desk

Phone: 1-844-746-4836

email: UDNConnect.org

For additional resources and more information about Visible you can find us here:

Web: ⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠

Podcast (ABC's of Disability Planning) - ⁠⁠⁠https://anchor.fm/abcs-disability-planning⁠⁠⁠

Waypoints - ⁠⁠⁠https://waypoints.substack.com/

NavigateMD provides a one-of-a-kind service to those with disabilities, their families, and others. Their platform connects these individuals with medical providers, businesses, non-profit organizations, and other resources that meet their needs. They understand that finding the help you need can often feel like a full-time job, resulting in high-stress levels and feeling overwhelmed. NavigateMD strives to make that a problem of the past with its easy-to-use, convenient, and time-efficient platform.

For those with disabilities, their families, and others looking for resources:

• Free to use.
• Easily find all relevant resources that meet your needs.
• Gain access to resources that you may otherwise not know about.
• View medical providers, non-profit organizations, businesses, support groups, and many other resources, all in one place!
• No more searching endlessly to find the help that you need. NavigateMD finds all resources that meet your criteria quickly and efficiently!
• Enhances independence, reduces stress, promotes inclusion, and builds on community relations.

For medical providers, businesses, and non-profit organizations:

• Generates new opportunities with individuals who have been directly matched with you, based on their needs, and the services that you provide.
• Basic accounts are free. They include the services that you offer, as well as your contact information.
• Upgrade to a premium account for enhanced features such as: appearing above basic accounts in search results, gaining access to real-time data tracking for activity on your account, additional profile features, and much more.
• Premium provider accounts can be considered a business marketing expense and could be tax deductible (consult your CPA).

Connect to learn more:

Website: https://navigatemd.com/

Phone: 1-888-898-0230

Email: info@navigatemd.com

For additional resources and more information about Visible you can find us here:

Web: ⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠

Podcast (ABC's of Disability Planning) - ⁠⁠⁠https://anchor.fm/abcs-disability-planning⁠⁠⁠

Waypoints - ⁠⁠⁠https://waypoints.substack.com/

Partners4Housing believes housing is the foundation of a good life. They are creating shared living solutions for adults with disabilities across the United States. They help you navigate the complex service agencies and secure housing for your loved one.

Their Products:

• Benefits & Housing Review

• Roommate Matching Pool

• Shared Living Development

• Consulting Services

Resources mentioned in the episode:

Affordable Housing Online

Family Opportunity Mortgage Loan Program

Connect to learn more:

Website: https://partners4housing.com/

Email: helpteam@partners4housing.com

Phone: 971-599-1010

Facebook: @Partners4Housing

IG: @partners4housing

For additional resources and more information about Visible you can find us here:

Web: ⁠⁠https://visiblenationaltrust.com/⁠⁠

Podcast (ABC's of Disability Planning) - ⁠⁠https://anchor.fm/abcs-disability-planning⁠⁠

Waypoints - ⁠⁠https://waypoints.substack.com/

SimplyHome’s remote direct support professional (rDSP) solution helps you give more people access to greater independence.

Whether you are looking for ways to expand capacity or better support your existing care teams, SimplyHome's new remote DSP solution provides real-time connectivity to real people. It’s a simple way to confidently accomplish more while providing exceptional care.

Both providers and end-users rate remote support services as providing more privacy, security, and independence than traditional services.

The SimplyHome System addresses concerns about cooking safety, falls, medication compliance, sleep patterns, wandering and elopement, aging in place, and more with a smart sensor system that alerts caregivers. SimplyHome's first interview: https://spotifyanchor-web.app.link/e/PJhz5L19cNb

Connect to learn more:

Website: https://www.simply-home.com/

Phone: (877) 684-3581

Facebook: @SimplyHome

X: @simply_home

For additional resources and more information about Visible you can find us here:

Web: ⁠https://visiblenationaltrust.com/⁠

Podcast (ABC's of Disability Planning) - ⁠https://anchor.fm/abcs-disability-planning⁠

Waypoints - ⁠https://waypoints.substack.com/

Real Life Access works with organizations to increase their bottom lines by making products and services accessible to people with disabilities -- and user-friendly for everyone. They provide: - accessibility courses, training. and consulting - website audit and remediation. They can find and fix issues preventing people with disabilities from accessing your website. - Public speaking about the importance of accessibility and how it can positively affect your bottom line Current courses include: - Access for Everyone, Digital Accessibility -Access for Everyone, Physical Accessibility - Access for Everyone, Cultural Accessibility - Access for Everyone, Accessibility Basics - See our website for descriptions

https://reallifeaccess.com/courses/ Connect to learn more:

Facebook: @RealLifeAccess

LinkedIn: https://www.linkedin.com/company/real-life-access/

For additional resources and more information about Visible you can find us here:

Web: ⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠

Podcast (ABC's of Disability Planning) - ⁠⁠⁠https://anchor.fm/abcs-disability-planning⁠⁠⁠

Waypoints - ⁠⁠⁠https://waypoints.substack.com/

RightHear provides talking signage so everyone can interpret and understand their surroundings in real-time.

The environment comes to life through audio descriptions delivered directly to a smartphone or tablet.
Helping everyone, everywhere explore, navigate, and experience the world safely and independently.

RightHear’s solution works both indoors and outdoors.

It supports any industry, sector, or size of venue, from a Safari Park to a university campus to a hotel to a local eatery, and everything in between.

It’s easy for businesses to install, easy to program, and even easier to use.

Connect to learn more:

Website: https://www.right-hear.com/

Phone: 917-732-2811 Facebook: @Right-Hear

IG: @righthearapp

Discord Community: https://discord.com/invite/d6wwRM4vNJ

For additional resources and more information about Visible you can find us here:

Web: ⁠⁠https://visiblenationaltrust.com/⁠⁠

Podcast (ABC's of Disability Planning) - ⁠⁠https://anchor.fm/abcs-disability-planning⁠⁠

Waypoints - ⁠⁠https://waypoints.substack.com/

The Experiential Life App brings together parents and caregivers raising neurodivergent kids through community, webinars, parent support, and downloadable resources, all contained in a convenient app on your favorite device. Webinars with professionals and neurodivergent people

Learn from the experts in real-time, or binge-watch the webinars at a time most convenient for you. Downloadable resources

Need more information that you can reference later? Download resources shared by our experts, or access our library of scripts to help you communicate with your growing list of providers to call. Community

Connect with other parents and caregivers raising neurodivergent kids. Find your community of people who get where you are, support where you are going, celebrate the wins and help you through the hard.

What's included in the Free Version

• Everything FREE to Experiential Life will be FREE to you.
• Live webinars with providers and agency representatives.
• Downloadable resources authored by Experiential Life.
• Quarterly Parent Support Group Meetings

What's included in the Plus Version

• Everything above and...
• Live webinars with neurodivergent adults.
• Downloadable scripts to help you communicate and advocate effectively.
• Monthly "Ask Me Anything" virtual meetings.

Connect to learn more:

IG: @experiential.homeschool.life FB: @experientiallife

Website: https://experiential-life.com/

Link to the episode about the State Developmental Disability Councils: https://spotifyanchor-web.app.link/e/qRWJyZ5QINb

Lifeline Support Program: https://www.lifelinesupport.org/

For additional resources and more information about Visible you can find us here:

Web: ⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠

Podcast (ABC's of Disability Planning) - ⁠⁠⁠https://anchor.fm/abcs-disability-planning⁠⁠⁠

Waypoints - ⁠⁠⁠https://waypoints.substack.com/