• 239: Finding Grants Brought Hope - Abby's Story: A son's near drowning accident
    Jan 8 2025
    “Hope doesn’t take away the darkness, but it shines some light in it.”- Abby Zachritz We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more information about this product, and we invite you to learn more by visiting their website. In this powerful first episode of the year, Katie sits down with Abby Zachritz—better known as Advocacy Abby—who shares her journey from personal tragedy to becoming a beacon of hope for families in need. Abby recounts the near-drowning accident that changed her son Wyatt’s life and how her unwavering hope and faith led her to discover vital resources. Now, through her platform, Abby connects families with grants and support they may not even know exists. This conversation is filled with practical advice, emotional insights, and inspiration for any parent navigating complex medical journeys. Katie and Abby dive into deep conversations about what it means to have hope during difficult seasons. 🔑 Key Points: Abby’s Story: Learn how Wyatt’s near-drowning accident, the initial prognosis, and how faith and hope played a role in his recovery.The Role of Hope: Why hope is essential for families facing medical uncertainty, and how it impacts not just parents but the entire care team.Community Support: How Abby’s community rallied around her family with meals, transportation, and childcare during hospital stays.Discovering Grants and Resources: Abby explains how she found grants to fund life-changing therapies and equipment for Wyatt.The Birth of Advocacy Abby: How Abby’s personal experiences led her to create a platform that connects families with essential grants and resources.The Connect Platform: Abby’s resource for families to search for grants by location, diagnosis, and need—streamlining a once overwhelming process. ✨ Takeaways for Listeners: Hope is a Lifeline: Even in the darkest moments, holding onto hope can make a difference in your child’s recovery journey.Ask for Help: Don’t be afraid to lean on your community and accept support—it’s vital for your well-being and your child’s care.Grants Exist for a Reason: There are countless grants available for equipment, therapy, and even family vacations—many families just need to know where to look.Preparation is Key: Keep diagnosis letters, IEPs, and insurance denials in one file to simplify grant applications.Advocacy Matters: What you learn from your experience can help another family; advocacy can start with sharing one resource or grant. 🌐 Links and Resources from today's Episdoe Connect PlatformFollow Abby on Instagram ❤️ Ready to make hospital visits and medical journeys easier for your family? With SupportSpot, you get instant access to expert child life tips, emotional support, and resources right at your fingertips. For the next 7 days, try it FREE and discover how this app can reduce stress, ease your child’s anxiety, and help you feel more prepared every step of the way. Subscribers have the opportunity to sign up for a free visit with a Child Life Specialist at CLOC to help you get the support you need from SupportSpot. Try it free by clicking this link. 🎙️Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan
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    34 mins
  • 238: Parents: How to Make the Most out of Rounds in the Hospital
    Jan 6 2025
    Navigating Medical Rounds: Tips for Parents from a Child Life Specialist In this episode, Katie Taylor, a certified child life specialist, offers critical insights and tips for parents navigating medical rounds with their hospitalized children. She introduces Q Rounds, a new tool developed by Dr. Mike aimed at making rounds more predictable and accessible for families. Katie explains the purpose and structure of rounds, highlighting the importance of family-centered rounds. She provides strategies for effective communication with the healthcare team, including preparing questions in advance and understanding the role of nurses during rounds. Katie also emphasizes the value of collaboration and offers solutions for parents who can't be physically present, such as using apps like SupportSpot for consistent support and information. The episode aims to empower parents with the knowledge to advocate for their child's healthcare needs effectively. 00:00 Welcome and Introduction 00:08 Understanding Medical Rounds 00:56 Introducing Q Rounds 02:08 The Importance of Family-Centered Rounds 03:47 Tips for Effective Rounds Participation 06:50 Alternative Ways to Participate in Rounds 07:48 Conclusion and Additional Resources When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: SupportSpot WebsiteDownload SupportSpot iOS or Android 85% of users report high satisfaction, appreciating the Child Life On Call App’s comprehensive resources and user-friendly interface.92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better.80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child.73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare Learn more here. Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan
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    10 mins
  • 237: Holding Space for Hope : The Final Episode of 2024
    Dec 18 2024
    "Hope isn't about avoiding the hard truths. It's about staying grounded in them and still believing that something good is possible."- Katie Taylor In this final episode of 2024, Katie dives deep into the meaning of hope, exploring its role in navigating challenges for parents, children and Child Life Specialists. Reflecting on personal experiences and heartfelt conversations with families, this episode unpacks how hope isn’t blind optimism but a source of strength that coexists with pain and uncertainty. With stories, reflections, and an invitation to carry hope into the new year, this episode is a comforting reminder of resilience and connection. Key Highlights Reflecting on the Year: A heartfelt wrap-up of 2024 with reflections on challenges, growth, and achievements in child life advocacy and care.Unpacking Hope: Hope is often misunderstood as blind positivity, but it’s actually about survival and resilience in the face of reality.The Role of Hope in Healthcare: For families navigating diagnoses or healthcare challenges, hope provides strength and a way to keep moving forward, even amidst uncertainty.Children and Hope: Children express hope in simple yet profound ways, teaching us to approach challenges with courage and trust.A Message to the Child Life Community: Encouragement for continued growth, innovation, and using technology to expand child life’s impact on families.An Invitation to Reflect: Listeners are encouraged to reflect on their own hopes and carry them into the new year. Resources for Listeners: SupportSpot App: A free 7-day trial available on iOS and Android, designed for families, clinicians, and child life specialists to support children through healthcare experiences.Child Life On Call Website: Explore resources and previous episodes, and learn more about child life services at ChildLifeOnCall.com.Advocacy Abby's Episode (Coming Soon): Look out for the upcoming episode in January featuring Abby’s story of hope after her son’s near-fatal drowning accident. A HUGE thank you to our sponsors: BeginHealth Prebiotics: Nutrition support for healthy digestion. Use code “ChildLifeOnCall” to get 25 percent off. 30% of children struggle with constipation and it can feel impossible trying to find a solution for your child. Especially if your child has food allergies or has a condition or illness, you want to feel good about the products you are selecting for your child. To me, finding a company whose products have the highest quality and natural ingredients is really important. Begin Health®’s flagship product, Growing Up Prebiotics, is a tasteless, textureless fine powder that easily mixes into water, juice, or smoothies. This makes it convenient for daily use without altering the flavor of your child’s favorite beverages. 25% off selected products: Daily Growing Up Prebiotics 28-Pack, Daily Growing Up Prebiotics Family Size, Double Subscription - Prebiotics, Families On-The-Go, Beginbaby Pre + Pro 28-Pack, Poop Tracker Gamecards and Stickers (6)🥇Applies to subscription and one-time ordersApplies to first 1 subscription ordersLimited to one use per customer Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan
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    11 mins
  • 236: The Mix of Joy & Grief through Medical Parenting (autism, lissencephaly and lennox gastaut syndrome) – Joanne's Story
    Dec 4 2024
    "Life is always in the mix of joy and grief, and those things coexist. But this is how I’m going to deal with it." - Joanne De Simone In this episode of the Child Life On Call Podcast, Joanne De Simone shares her journey as a parent raising two sons with disabilities. From navigating her eldest son Benjamin’s rare brain malformation, lissencephaly and complex medical needs to supporting her younger son Sebastian, who is on the autism spectrum. Joanne discusses the challenges, victories, and personal growth she’s experienced. As a mother and special education teacher, and now an advocate for families of children with special needs, Joanne reflects on the importance of building community, embracing support, and living fully in the moment. Her story offers hope and practical wisdom for parents and professionals alike. Key Insights: The Power of Community: Joanne emphasizes the importance of connecting with other families who share similar experiences, as they provide invaluable emotional and practical support. Advocating for Your Child: Joanne shares her approach to advocating for her sons, including the importance of interviewing healthcare providers to ensure they see her children as whole individuals. Living in the Moment: Joanne describes how her background in modern dance taught her to “live in the movement,” helping her find balance and perspective amid constant challenges. Adapting Over Time: Joanne reflects on how the challenges of parenting evolve as children grow, from educational decisions to navigating adult systems of care. Strength in Vulnerability: Through writing and advocacy, Joanne has found a way to process her experiences and turn them into a source of strength for others. A HUGE thank you to our sponsors: BeginHealth Prebiotics: Nutrition support for healthy digestion. Use code “ChildLifeOnCall” to get 25 percent off. 30% of children struggle with constipation and it can feel impossible trying to find a solution for your child. Especially if your child has food allergies or has a condition or illness, you want to feel good about the products you are selecting for your child. To me, finding a company whose products have the highest quality and natural ingredients is really important. Begin Health®’s flagship product, Growing Up Prebiotics, is a tasteless, textureless fine powder that easily mixes into water, juice, or smoothies. This makes it convenient for daily use without altering the flavor of your child’s favorite beverages. 25% off selected products: Daily Growing Up Prebiotics 28-Pack, Daily Growing Up Prebiotics Family Size, Double Subscription - Prebiotics, Families On-The-Go, Beginbaby Pre + Pro 28-Pack, Poop Tracker Gamecards and Stickers (6)🥇Applies to subscription and one-time ordersApplies to first 1 subscription ordersLimited to one use per customer Resources and Tips Shared: Joanne’s Blog and Book: Visit Joanne’s blog at special-educationmom.com to learn more about her book, Fallen Recovery, and read more through her blog posts. Support Groups for Rare Conditions: Joanne highlights the value of connecting with email support groups and online communities for rare conditions. Search for condition-specific groups on platforms like Facebook or Yahoo Groups. Begin Health Prebiotics: The gut health of children is important. Visit BeginHealth.com and use code ChildLifeOnCall for 25% off products. SupportSpot: Download the SupportSpot app at childlifeoncall.com/supportspot for resources tailored to families navigating pediatric care. Tune in for an episode filled with vulnerability, wisdom, and a reminder of the strength found in community and resilience. When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: SupportSpot WebsiteDownload SupportSpot iOS or Android 85% of users report high satisfaction, appreciating the Child Life On Call App’s comprehensive resources and user-friendly interface.92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better.80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child.73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare Learn more here. Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She ...
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    44 mins
  • 235: A Mother’s Journey of Love, Loss, and Resilience (crohn's and ulcerative colitis) - Kathy's Story
    Nov 20 2024
    “If anybody was to ask me what is one of my biggest strengths, I have to tell them it's resilience… You can throw almost anything at me and I can handle it. I mean, there isn't anything any bigger in this world than losing a child.”-Kathy In this heartfelt episode, Katie Taylor sits down with Kathy, a mother who shares her journey of raising and caring for her daughter Lauren through multiple medical challenges and eventual passing. Kathy’s story is both heart-wrenching and inspiring. Kathy reflects on the emotional, physical, and logistical challenges of managing long hospital stays, becoming a caregiver to a child with complex medical needs, and balancing self-care amid unimaginable circumstances. Her insights on resilience, self-advocacy, and the deep bond with her daughter provide comfort and inspiration. Kathy’s story is a powerful reminder of the strength it takes to navigate pediatric healthcare, turning pain into purpose, and the lasting impact of a parent's love. "I was there when that beautiful creature wandered into my life, and I was there when she drifted out." – Kathy Key Insights: The Importance of Self-Care: Kathy emphasizes the need to care for oneself to better support a sick child and encourages parents to take breaks from the hospital without guilt. Parent as Advocate: Transitioning into the role of a medical advocate for her daughter, Kathy highlights how training, learning, and persistence made a difference in Lauren’s care. Finding Strength in Connection: Kathy discusses the vital role of family, friends, and small acts of kindness in sustaining her during Lauren’s long hospital stays. Maintaining Normalcy: From packing business-casual clothes to involving Lauren in picking outfits, Kathy underscores the importance of preserving a sense of normalcy amid medical chaos. Legacy of Resilience: Kathy’s advocacy didn’t end with Lauren’s passing; she continues to support others by sharing her story and working on resources for long hospital stays. A HUGE thank you to our sponsors: BeginHealth Prebiotics: Nutrition support for healthy digestion. Use code “ChildLifeOnCall” to get 25 percent off. 30% of children struggle with constipation and it can feel impossible trying to find a solution for your child. Especially if your child has food allergies or has a condition or illness, you want to feel good about the products you are selecting for your child. To me, finding a company whose products have the highest quality and natural ingredients is really important. Begin Health®’s flagship product, Growing Up Prebiotics, is a tasteless, textureless fine powder that easily mixes into water, juice, or smoothies. This makes it convenient for daily use without altering the flavor of your child’s favorite beverages. 25% off selected products: Daily Growing Up Prebiotics 28-Pack, Daily Growing Up Prebiotics Family Size, Double Subscription - Prebiotics, Families On-The-Go, Beginbaby Pre + Pro 28-Pack, Poop Tracker Gamecards and Stickers (6)🥇Applies to subscription and one-time ordersApplies to first 1 subscription ordersLimited to one use per customer Resources and Tips: Support Spot App: Tailored guidance for families navigating medical experiences. Learn more Support Win Win Charity's mission of bringing smiles to children, families, and hospital staff nationwide. Join us to celebrate 12 years of inspiring performances, powerful stories, and magical moments. For a minimum donation of just $12, you can access Win Win Charity's 2024 Telethon fundraiser show in honor of our 12 years of bringing smiles to children in hospitals nationwide! Join the celebration featuring our 2024 "Entertainer of the Year" Tom Pesce, our 2024 "Hospital of the Year" Le Bonheur Children's Hospital, and our first-ever documented patient journey. There are two ways to join the experience on December 2nd! #1 Attend virtually on LeaderPass from anywhere in the world with a virtual pass. #2 Come to our in-person watch party at The Beverly Theater in downtown Las Vegas. We have a special surprise performance at our rooftop reception following the Telethon for those attending in Las Vegas. Simply donate $12 (or more), and we'll see you there! Reserve your spot: https://winwintelethon.com/ When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: SupportSpot WebsiteDownload SupportSpot iOS or Android 85% of users report high satisfaction, appreciating the Child Life On Call App’s comprehensive resources and user-friendly interface.92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better.80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child.73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their ...
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    44 mins
  • 234: Expert Child Life Tips for Supporting Children Through an Upper GI Procedure
    Nov 13 2024
    Today's episode is dedicated to the loving memory of Dr. Meredith Hitch, a cherished pediatric gastroenterologist at Ochsner Baton Rouge. “You want to make sure that you are ready to be able to prepare not only yourself but your kiddo.” - Emily Martinec, CCLS In this episode host Katie Taylor chats with Emily Martinec, another experienced Child Life Specialist. These two dive into the complexities of preparing children for an upper GI procedure. They provide valuable insights and practical tips for both parents and fellow specialists, sharing lessons learned from their work in pediatric radiology and GI. From scheduling the procedure to supporting children emotionally and physically, Katie and Emily guide listeners through every step of the process for both kids and parents. Whether you're a parent or a professional, this episode is packed with advice to help create an emotionally safe and successful experience for children. A HUGE thank you to our sponsors: BeginHealth Prebiotics: Nutrition support for healthy digestion. Use code “ChildLifeOnCall” to get 25 percent off. 30% of children struggle with constipation and it can feel impossible trying to find a solution for your child. Especially if your child has food allergies or has a condition or illness, you want to feel good about the products you are selecting for your child. To me, finding a company whose products have the highest quality and natural ingredients is really important. Begin Health®’s flagship product, Growing Up Prebiotics, is a tasteless, textureless fine powder that easily mixes into water, juice, or smoothies. This makes it convenient for daily use without altering the flavor of your child’s favorite beverages. 25% off selected products: Daily Growing Up Prebiotics 28-Pack, Daily Growing Up Prebiotics Family Size, Double Subscription - Prebiotics, Families On-The-Go, Beginbaby Pre + Pro 28-Pack, Poop Tracker Gamecards and Stickers (6)🥇Applies to subscription and one-time ordersApplies to first 1 subscription ordersLimited to one use per customer Key Insights Preparation is Key: Schedule the procedure around your child’s routine (e.g., feeding and nap times) and advocate for care at a pediatric facility. Child-Led Support: Tailor explanations based on your child’s age—toddlers need short, concrete steps, while older children benefit from a detailed walkthrough. Creative Coping Strategies: Bring familiar items like a favorite cup or lovey, and offer simple choices (e.g., flavoring options for the barium). Parent Emotional Regulation: Stay calm and positive, which helps children feel safe and supported during the procedure. Teamwork with Staff: Collaborate with radiology staff and child life specialists to create a smooth experience tailored to your child’s needs. Resources and Tips: Support Spot App: Step-by-step guidance and visuals for procedures like the upper GI. Download here Age-Appropriate Preparation Tips: This episode provides strategies tailored to each age group, offering practical and developmentally appropriate tips to help ease anxiety and ensure a smoother experience for both kids and caregivers. When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: SupportSpot WebsiteDownload SupportSpot iOS or Android 85% of users report high satisfaction, appreciating the Child Life On Call App’s comprehensive resources and user-friendly interface.92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better.80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child.73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare Learn more here. Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan
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    42 mins
  • 233: From NICU Nurse to NICU Mom: Premature Twins born at 33 weeks - Brittney’s Story
    Oct 30 2024
    A huge thank you to our sponsor of today's podcast, Begin Health. - Use code CHILDLIFEONCALL for 25% off 30% of children struggle with constipation and it can feel impossible trying to find a solution for your child. Especially if your child has food allergies or has a condition or illness, you want to feel good about the products you are selecting for your child. To me, finding a company whose products have the highest quality and natural ingredients is really important. Begin Health®’s flagship product, Growing Up Prebiotics, is a tasteless, textureless fine powder that easily mixes into water, juice, or smoothies. This makes it convenient for daily use without altering the flavor of your child’s favorite beverages. 25% off selected products: Daily Growing Up Prebiotics 28-Pack, Daily Growing Up Prebiotics Family Size, Double Subscription - Prebiotics, Families On-The-Go, Beginbaby Pre + Pro 28-Pack, Poop Tracker Gamecards and Stickers (6)🥇Applies to subscription and one-time ordersApplies to first 1 subscription ordersLimited to one use per customer "Being both a NICU nurse and a mom transformed how I view and support each child and family I work with." In this episode host Katie Taylor speaks with a NICU nurse and mother, Brittney, who shares her unique perspective on navigating the healthcare system from both sides; a NICU nurse and NICU mama. Brittany reflects on her journey as a NICU nurse who then became a NICU mom of twins, describing how her experiences inspired her to write a NICU-themed children's book and launch a publishing company. Her story highlights the emotional, mental, and logistical challenges of parenting in a NICU environment and how she uses her experiences to support families facing similar journeys. Key Insights and Lessons: Value of Empathy and Shared Experience: Brittney's journey as a NICU mom brought a new level of empathy to her work, allowing her to connect deeply with the parents she now supports. Empowering NICU Parents: Brittney emphasizes the importance of empowering parents with hands-on involvement, helping them gain confidence in their caregiving roles despite medical complexities. Advocating for Comfort in the NICU: Encouraging parents to bring personal items, create a nurturing space, and advocate for their emotional needs helps make the NICU environment feel more like home. Navigating the Unknowns of NICU Life: For Brittney, the hardest part of the NICU experience was the slow, unpredictable progress toward discharge, which she now prepares her patients’ families for, emphasizing resilience and patience. Resources and Tips: Find Brittney's resources at Thrift Publication Company. This includes: Her childrens book “Cradles of Courage: Adventures in the NICU” in both pink and blue “I am a NICU mom: Coloring Book” A NICU journal, “The Journal of Our Story: A Medical Notebook for the Organized NICU Parent.” which is designed to help parents track progress and milestones Brittney's Instagram for updates and NICU-related content: @thriftpubco When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: SupportSpot WebsiteDownload SupportSpot iOS or Android 85% of users report high satisfaction, appreciating the Child Life On Call App’s comprehensive resources and user-friendly interface.92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better.80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child.73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare Learn more here. Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. Instagram.com/childlifeoncall Facebook.com/childlifeoncall linkedin.com/in/kfdonovan
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    35 mins
  • 232: Preparing and Supporting your child: A son with Breath Holding Spells-Alessandra's Story
    Oct 16 2024
    A huge thank you to our sponsor of today's podcast, Begin Health. - Use code CHILDLIFEONCALL for 25% off 30% of children struggle with constipation and it can feel impossible trying to find a solution for your child. Especially if your child has food allergies or has a condition or illness, you want to feel good about the products you are selecting for your child. To me, finding a company whose products have the highest quality and natural ingredients is really important. Begin Health®’s flagship product, Growing Up Prebiotics, is a tasteless, textureless fine powder that easily mixes into water, juice, or smoothies. This makes it convenient for daily use without altering the flavor of your child’s favorite beverages. 25% off selected products: Daily Growing Up Prebiotics 28-Pack, Daily Growing Up Prebiotics Family Size, Double Subscription - Prebiotics, Families On-The-Go, Beginbaby Pre + Pro 28-Pack, Poop Tracker Gamecards and Stickers (6)🥇Applies to subscription and one-time ordersApplies to first 1 subscription ordersLimited to one use per customer "When children are better prepared for a procedure or medical situation, it doesn't eliminate all of the struggles, but it builds a level of trust." - Alessandra In this week's episode of The Child Life On Call Podcast, host Katie Taylor sits down with Alessandra, the founder of PrepMeKids, to discuss her personal journey navigating her son's rare medical condition, breath-holding spells, from the NICU to childhood. Alessandra shares the emotional toll of advocating for her son in a foreign country, where she had to bridge communication gaps and trust her instincts in a healthcare system very different from the one she knew. Her story highlights the power of preparation and communication with children, especially in medical situations, and how her personal experiences led her to create customizable books to help kids feel empowered and prepared for medical procedures. Through her experience, Alessandra emphasizes the importance of honesty, advocacy, and resilience in medical parenting. "Parents do know their children, even if they're very young, and we do have gut instincts. It's okay to ask questions and to push back." - Alessandra Key Insights: Preparation is crucial for both children and parents when facing medical procedures. Customized books like PrepMeKids help reduce anxiety and build trust. Advocacy is an essential skill for parents, especially when navigating different healthcare systems. Alessandra emphasizes trusting your gut and asking questions, even when it's uncomfortable. Honesty with children about what to expect in medical procedures fosters trust and resilience; Alessandra narrates her son’s breath-holding spells to help him understand what’s happening. Tracking and organizing medical symptoms can help parents notice patterns and advocate for appropriate care. But knowing when to stop tracking is essential for mental well-being. Emotional overwhelm is common for parents and caregivers. Finding tools and strategies to manage stress, like Alessandra's tips on preparation, is key to long-term resilience. Resources and Tips Shared in the Episode: PrepMeKids: Customizable books designed to help children prepare for medical procedures. Support Spot App: A tool to help parents track symptoms, write down questions, and advocate for their children during medical appointments. What’s an IV: A children’s book by child life specialist Melissa Fadel and nurse Rosemary Pang, aimed at preparing kids for the IV process in a simple, non-scary way. @PedsDocTalk on Instagram recently shared a video of a child having a breath-holding spell that went viral. Click here to watch When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: SupportSpot WebsiteDownload SupportSpot iOS or Android 85% of users report high satisfaction, appreciating the Child Life On Call App’s comprehensive resources and user-friendly interface.92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better.80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child.73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare Learn more here. Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both ...
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    46 mins