Episodes

  • Looking at Care From Both Sides Now: With Guest Becky Curran Kekula

    Looking at Care From Both Sides Now: With Guest Becky Curran Kekula
    Jan 9 2025
    Our guest today is Becky Curran Kekula. Becky is a disability inclusion advocade. She is a speaker and movie industry equity and inclusion expert. Her experiences of both achrondoplasia, which is a form of drawfism, and medical motherhood give Becky a unique persepective on care.

    http://www.beckymotivates.com/About-Us.html



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    36 mins
  • Replay of Fully Fund Care: with guest Calli Ross

    Replay of Fully Fund Care: with guest Calli Ross
    Dec 26 2024
    This episode was originally published on March 7, 2023. The Guest this week is Calli Ross who is a family caregiver and leader in the movement in Oregon to allow parents to be paid for providing extraordinary care to their minor children with disabilities. In the 2025 legislative session, Tensy's law, named for her son will be introduced to eliminate the lottery system that was created with SB91 which allows only about 10% of otherwise eliegible children to hire parent providers for pay. Tensy's law will allow all otherwise eligible children to pay parent providers for extraordinary care needs, the same as they would be able to pay any other direct support professional.

    https://www.facebook.com/groups/1750726871736838

    https://www.facebook.com/ADSOregon

    https://olis.oregonlegislature.gov/liz/mediaplayer/?clientID=4879615486&eventID=2023021052

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    43 mins
  • These Are All Normal Feelings: With Guest Lynn Abaté-Johnson

    These Are All Normal Feelings: With Guest Lynn Abaté-Johnson
    Dec 19 2024
    Lynn Abaté-Johnson joins Lisa to discuss the breadth and complexity of our human feelings as caregivers, particularly at the holidays. We reflect on the paradox that embracing difficult emotions can bring more ability to adjust to them, live with them, and notice the more pleasant ones which can exist right alongside them.

    After being a primary caregiver for her mom for over six years, International Best-Selling Author & Speaker, Lynn Abaté-Johnson, understands the typhoon of emotions and responsibilities that come with caring for a loved one. Like most family caregivers, Lynn juggled caregiving duties with a full-time career. In her daily life, she’s a global community builder and business consultant. Lynn wrote the book, “Out Of Love: A Daughter’s Journey With Her Mom To The End” to normalize and de-stigmatize what many families may take for granted or miss in their roles as caregivers. She offers practical tools & resources, along with encouragement for other family caregivers, with the goal of bringing light to the dark and peace to the soul.

    Get a free chapter of the book here!

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    35 mins
  • Connections, the Holidays and Cyclical Grief: With Guest Jessica Patay

    Connections, the Holidays and Cyclical Grief: With Guest Jessica Patay
    Dec 12 2024
    Jessica Patay is the founder and executive director of We Are Brave Together which brings together and uplifts over three thousand parents of children with disabilities. When her son was diagnosed with Prader-Willi syndrome, she met a warm community of famlies whose child also experienced the condition. We Are Brave Together creates a similar experience for many more moms whose children experience a wide variety of disabilities. You can join a free online or in person facilitated support group, receive newsletters and check out the Brave Together podcast!

    We talk about loving our caree, all the myriad feelings that can come up during the holidays including cyclical grief, and how to gift a family caregiver.



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    23 mins
  • Caregiver Profiles with Guest Dr Jennifer Olsen

    Caregiver Profiles with Guest Dr Jennifer Olsen
    Dec 5 2024
    When we move away from specifying the care recipient's disease to focus on the caregiver, we find that different ways of talking about care experiences are very useful and descriptive. The Rosalynn Carter Institute for Caregivers together with Duke University created a system to describe various caregiver experiences called Caregiver Profiles: Are you learning about a new diagnosis for your family member? or maybe managing a static illness? or managing a system or setting change with your loved one? This way, we can talk about our experiences and needs as caregivers without sharing the medical details of our loved ones, and find commonality with people who don't even have direct care experience. For example: everyone has been through some kind of big change where they had to learn a lot at once.

    Dr. Jennifer Olsen joins us. Dr Olsen is an experienced epidemiologist. She serves as Chief Executive Officer of the Rosalynn Carter Institute for Caregivers (RCI), which promotes the health, strength, and resilience of the 53 million family caregivers throughout the United States.

    More information about the Caregiver Profiles is here.



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    29 mins
  • A Holiday Message from Lisa

    A Holiday Message from Lisa
    Nov 28 2024
    A heartfelt wish for your holiday season from Lisa.

    May your coming month be full of moments that you genuinely enjoy!

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    6 mins
  • What It Means To Be Human: with guest Elissa Strauss

    What It Means To Be Human: with guest Elissa Strauss
    Nov 21 2024
    This is a must listen episode! Elissa Strauss brings to the podcast her deep contemplation of all aspects of caregiving.

    Elissa is the author of "When You Care", which is described as an “urgent and necessary book” by Rebecca Traister, New York Times bestselling author and we agree.

    How do we see care as the huge profound experience that it is?: Care is just as worthy of storytelling, respect, and material support as mountain climbing, and full of opportunitites to engage with the core questions around being human.

    Details about the book here: https://www.simonandschuster.com/books/When-You-Care/Elissa-Strauss/9781982169275

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    27 mins
  • Telling Care Stories With Data: with Denise Brown

    Telling Care Stories With Data: with Denise Brown
    Nov 14 2024
    In this re-launch of the podcast, we talk data around caregiving. Denise Brown is with us to talk about data, why it matters and her tool to help you view some of your own numbers. Why do we need the numbers around care? We have some compelling reasons.

    Explore your own caregiving stats
    The Data Story of Caregiving event registration

    Denise supports individuals managing difficult life experiences with coaching, planning and training. Through her work, Denise helps clients find hope, possibilities and a path forward. Denise began helping individuals who care for a family member in 1990 and launched a business to help them in 1995. She created one of the first online caregiving communities in 1996 which she managed until its sale in 2020.

    Denise now develops and delivers training programs for the workplace and for individuals who want to coach family caregivers. More than 400 individuals from eight different countries have enrolled in her training programs offered through her company, The Caregiving Years Training Academy.

    Denise began helping her parents in 2004 after her father’s bladder cancer diagnosis. Her mom, who had Parkinson’s disease, died in August 2022, one year to the date after Denise’s brother died. Her father died in July 2023.

    You can connect with Denise via her community, CaringOurWay.com.

    Become a supporter of this podcast: https://www.spreaker.com/podcast/love-doesn-t-pay-the-bills--5692861/support.
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    42 mins