• 152: An Interview With Erin Collins, Founder of the Chasing Rainbows Foundation
    Jan 6 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Erin Collins, founder of the Chasing Rainbows Foundation in North Carolina's Outer Banks. The charity raises awareness of HDFN and other rare pregnancy-related diseases.

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    15 mins
  • 151: An Interview With NMOSD Expert Dean Wingerchuk, MD, of the Mayo Clinic
    Jan 2 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Dean Wingerchuk, MD, speaks on the potential for treating neuromyelitis optica spectrum disorder (NMOSD) with stem-cell therapy.

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    10 mins
  • 150: An Interview With Beloved Huntington Disease Activist Jimmy Pollard
    Dec 27 2024

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jimmy Pollard, who for the past 38 years has advocated on behalf of people around the world affected by Huntington disease.

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    12 mins
  • 149: An Interview With Clinical Psychologist Rosalind Kalb, PhD, of Can Do-MS
    Dec 18 2024

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews clinical psychologist Rosalind Kalb, lead senior programs consultant for Can-Do MS, a Colorado-based nonprofit health and wellness organization.

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    14 mins
  • 148: An Interview With Huntington Disease Patient Activist Tanita Allen
    Dec 16 2024

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Tanita Allen, a Black woman with Huntington disease who has made it her mission to increase awareness about the disorder and its devastating impact on patients regardless of their racial or ethnic background.

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    11 mins
  • 147: An Interview With Jean Elwing, MD, a Pulmonary Hypertension Expert at the University of Cincinnati
    Dec 3 2024

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jean Elwing, MD, a professor of medicine and director of the Pulmonary Hypertension Program at Ohio's University of Cincinnati.

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    14 mins
  • 146: An Interview With Payel Gupta, MD, on the Importance of Social Media in Healthcare
    Nov 27 2024

    Larry Luxner, senior correspondent for Rare DIsease Advisor, interviews Payel Gupta, MD, on social media platforms such as TikTok, Facebook and YouTube, and their importance in reaching today's public—and fighting online misinformation.

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    9 mins
  • 145: An Interview With Sandy Siegel, Founder and President of the Siegel Rare Neuroimmune Association
    Nov 22 2024

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sandy Siegel, founder and president of the Siegel Rare Neuroimmune Association. Siegel started the charity 30 years ago with his wife, Pauline, after she was diagnosed with transverse myelitis. After Pauline's death in 2017, the organization expanded to include five other rare neuroimmune diseases including neuromyelitis optica spectrum disorder (NMOSD).

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    16 mins