The POTScast

By: Standing Up to POTS Inc.
  • Summary

  • Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.
    © 2021
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Episodes
  • E237:Great Resources from The Dysautonomia Project with Dr. June Bryant, DNP, APRN, CPNP-PC and Cheryl Faber
    Dec 22 2024

    The Dysautonomia Project is a Florida-based non-profit best known for their wonderful book on Dysautonomia for both patients and providers. But they also have other great resources including their DysCourse program for patients and caregivers, education courses for healthcare practitioners, list of recommended practitioners by geographic region, and more. Professor June Bryant, DNP, APRN, CPNP-PC and Educational Director Cheryl Faber explain their history, mission, upcoming events and how to get involved and/or take advantage of the offerings made possible by The Dysautonomia Project.

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

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    44 mins
  • E236:Angela on MALS surgery, vascular compressions and more
    Dec 17 2024

    Angela was healthy, busy, active and loved hiking and traveling before the cascade of syndromes arrived: POTS, MCAS, hEDS, MALS, May Thurner Syndrome, Nutcracker Syndromes, ME/CFS. Angela discusses how she worked to find the right experts, get answers, how her surgery for MALS went, which symptoms it did and didn't help, and which treatments she is considering now. She also discusses how she copes and stays so productive while juggling these conditions. You can follow Angela at...

    Instagram: @positivitypotsedsmcas TikTok: @positivitypotsedsmcas Facebook: https://www.facebook.com/positivitypotsedsmcas/

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

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    46 mins
  • E235:Heart Expert Joseph Anew on Mast Cell Matters with Dr. Tania Dempsey
    Dec 9 2024

    Joseph Anew is now the picture of health and fitness, but as a young man he was severely injured and received a dior diagnosis. When conventional treatments failed, he moved to a tropical beach to live out his few remaining days. What happened next has been the basis for his great fitness and career helping others to overcome health challenges, feel their best, and perform beyond expectations. Joseph describes the pillars of his approach, and Dr. Dempsey discusses her personal experience with his program. They include practical tips for where patients can start even if their health is currently very poor.

    Joseph's program can be found here.

    More information about Dr. Tania Dempsey and her practice can be found at https://drtaniadempsey.com/.

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

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    1 hr and 5 mins

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Thank you for sharing your story

Tanya I'm from Utah and was just dx. you're not alone! prayers & big hugs!

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